Listed for transplant

[carole-shaw]

Hi all quick update I was listed for transplant on Thursday and don't really know how I feel about it. My heads all over the place at the moment. Is this normal.

Thanks

Carole

[Identity75]

Perfectly normal. It’s a big thing. Once you get your head round it you’ll be fine.

[carole-shaw in reply to Identity75]

Thanks for the reply strange feelings going on at the moment at least I know is normal now.

[Isabelle2]

Hi

I didn’t tell my hubby that it was possible I would go on the list until I was booked in for the tests. I needed to think. Infact there was nothing to think about, I was very ill and if I hadn’t had the transplant I wouldn’t be here today. It’s daunting, a major op, but they know what they’re doing so you will be in safe hands. I promise you, if you knew now how well you will feel later you would not be worrying, hestitating or anything. I didn’t have to wait but I imagine that must be the worst part. All I say is “Bring It On!” You’ll feel GREAT!

[sunnysmile in reply to Isabelle2]

What a fantastic reply - this is what forums are all about - giving positivity in the face of pure fear. Your reply will be a blessing to so many. I am nowhere near that stage as yet but if I was I would "save" your post forever and I know it would give me a sense of survival and hope.

Kindest regards to all on here and keep strong.

G.

[Isabelle2 in reply to sunnysmile]

Thx so much. I really was in a sh*t place and now am so well. If I can give a little positivity then that’s great!

[1football]

Hi Carole

Perfectly normal reaction but what you must realise is that your lucky enough to be listed it means there is a very very good chance of a long healthy life it is a massive op but the surgeons these days are amazing and you really will be in excellent hands the wait can be hard it depends on how poorly you are some wait only a few weeks others years I waited 17 months but so grateful I am transplanted to my wonderful donor and the medical team.

I wish you all the very best of luck and please feel free to ask any questions

Huw

[carole-shaw]

Thanks for your encouraging reply I know how very lucky I am and very grateful. I had a kidney transplant 9 years ago from my sister so not really worried about the operation. I'm not really an emotional person I just get on with it just having strange feelings and don't know why.

Thanks again

[bluemoon2]

Hi carole without a dought I know mine was,off the list now as stable it's kinda 6 and two three's,though I'm glad I'm off the list, wishing you the best.

[Smyally]

Perfectly normal reaction. I also had thoughts of how do I tell the family? Who will look after my daughter at short notice? Who will walk the dog? Etc. Just panic thoughts really. But you do settle back down again into daily life. Just make your case is ready for when that call does come. Good luck xx

[dougalgromit]

Hi Carole when my husband was listed for transplant he was very enthusiastic about getting it because he was very frail I think I had every emotional breakdown. My husband was put on the list two weeks ago and I’m happy to say my hubby has had his transplant and now out of icu and in the liver ward we feel very humble at the fact someone gave us the most precious gift anyone could ask for life we will be forever grateful to our donor and their family xx

[carole-shaw in reply to dougalgromit]

So happy for u both hope all goes well from now on for u both xx

[TOPSPINNER in reply to dougalgromit]

MY WIFE IS 76 I DONT NO IF SHE WILL BE ABLE TO GET A TRANSPLANT

[GrannyDoll61]

My husband was listed on the Tuesday and had the phone call on the Friday.Remember it's lifesaving surgery and really does give you your life back.Good luck xxx

[Isabelle2 in reply to GrannyDoll61]

Gosh, that’s great. You are so right!

[dougalgromit in reply to GrannyDoll61]

Thankyou x

[readie56]

Getting listed is the first step to getting your health back Carole. It's still a way to go with restrictions on you as you must be available 24/7 but... The end of your journey is in sight now

Best wishes

John