Liver stages

[Guyb]

How do you know what stage of liver failure your at i was diagnosed 7 yrs ago and told I had decompensated liver disease I gave up drinking and joined a gym and eat healthily I’m on vit b and thiamine my 6 month scans are ok as are my bloods any advice would be a great help good or bad

[AyrshireK]

What symptoms did you have at the time of your decompensated cirrhosis diagnosis?

It would appear you now have compensated if your liver has stabilised in the way it has and lack of symptoms.

What follow up regime are you having, you should be having 6 monthly ultrasound scans (to check for changes in the liver and check other organs and for presence of portal hypertension and ascites), 6 monthly bloods including AFP tumour marker and when was your last ultrasound scope?

With a diagnosis of cirrhosis you do need to be regularly monitored so you have the warning if things are 'going off'.

Sounds like you are doing well at the moment though, keep doing what your doing.

Katie

[Guyb]

My last scan was 1 month ago no focal lesions I havnt had any fluid drained in 7 yrs at time of diagnosis bloated stomach and ankles and a yellow tinge

[AyrshireK in reply to Guyb]

Sounds good. Liver is probably compensated and stable ............. like my hubby just now.

Katie

[Guyb in reply to AyrshireK]

Thank you for that and please pass on my best wishes to your husband Guyx

[Gemma68]

Is there some guide to the stages? I've tried to get a straight answer out of my hepatologist (sp?) for seven years and I still can't get him to pin it down... 😡

[Thistle09 in reply to Gemma68]

Gemma, if you really push for a "straight answer" and put it in clear language (e.g., Am I at Stage X?) you might get at least an acknowledgment, or some sort of half-a**ed reply. I have found that most doctors prefer not to tie themselves down to a specific answer. Just be grateful for that, as, imo, it means the doctor would prefer to hedge his/her bets in the event the situation improves (yay!) or gets worse all of a sudden. They really only want you to stop engaging in harmful behavior and to take all your medications as prescribed. They want you to get better, although they realize they have no control over you once you're out of their sight.

[Gemma68 in reply to Thistle09]

Thanks Thistle, I've actually got an appt to see him on Tuesday so might see if I can corner him into an answer lol. Although saying that, I'm picking up results of a few various tests so possibly won't remember!

[Hidden]

Hi

Write all your questions down before you go and see him. Also, is there anyone that can go with you. Two pairs of ears are better than one!! I'd be useless going on my own!! I'd forget my head if it was lose!!!! Love and hugs Lynne xxxx