Helpless.

[Hubbie2]

Hi my husband has chronic liver disease. He has been in hospital and the last time they removed 21 litres of fluid from his stomach he also had very bad bleed they managed to band and glue his stomach he has been home a week now but is so weak he can hardly get out off bed. He is wasting away in front of my eyes . If he had cancer you would get help I.m finding if you have liver disease your on your own.

[Geffy22]

Hi hun, your hubby is obviously very poorly. has the hospital put in place testing etc to see how his liver is coping? can the gp help arrange visits by the district nurse etc?

I wish I'd just sat with my hubby after he left hospital because I only knew 24hrs before he died that he was palliative.

Sending you a big hug.

Bless you xxx

[1713]

Dear Hubbie2

I'm so sorry you and your husband are facing this awful illness. I agree with what you say. I feel there is a prejudice about liver disease and wonder if that's why there isn't the same support. My husband has had several admissions for sepsis whilst on the liver transplant list. When he's admitted through a and e it's obvious some medical staff make assumptions about why he has liver disease and then judge on the back of those assumptions. Never their place to judge. My daughter had bone cancer at 13, months of chemotherapy and an amputation, she's now 17 and doing well. The support for her and us as a family was excellent. Yes there is a massive difference.

I have no idea of your personal situation but want to mention some things that are helping me.

Is there a specialist liver nurse at your local hospital? They would be a source of help and information. If finances are an issue have you applied for PIP? If your husband is seeing a liver specialist they may be able to speed the application up depending on how I'll your husband is. I guess you must be caring for your husband too.

The hospital put me in touch with a local carers group. I haven't felt the need to use it but there is a helpline you can call just to talk so you don't feel alone.

Through my daughters and husband illnesses I've had to accept that I need help from friends and family and on occasions to ask for it. I found people really did want to help they just didn't know how or what to do or say. I was always the one helping so it was hard to accept things had changed. I hope there are friends or family near by

Thinking of you both and wishing you the strength you need ♥️♥️♥️

[Hubbie2 in reply to 1713]

My husband sadly passed away tonight. Feeling completely numb. Xx

[AyrshireK in reply to Hubbie2]

Sorry to hear that Hubbie2, at least he is at peace now and no more suffering. Thoughts with you.

Katie xx

[1713]

Dear Hubbie2 I am so so sorry. How life changes in a moment. I have no words but reading your message my heart aches for you and your husband. I do wish you strength and the company of good people to help you through. You continue to be in my thoughts. ♥️

[jojokarak]

So sorry to hear love and thoughts are with you x