One of THOSE......days

[Chelle_]

The kinda day where people look at you or talk to you and all you want is to be left alone.

I’m trying not to be horrible but my face is giving me away! 😒

[john110865]

Starting to get to know them! Chin up superstar! Jx

[charleeeeeeeeeeeee]

Big hugs xxx

[Chelle_ in reply to charleeeeeeeeeeeee]

Thank you x

[grace111]

I know what you mean i cant hide my true feelings as it shows on my face. This day will pass chelle_ hopefully a better day lies ahead. im having a rotten day myself and feel like crying and feel very emotional. Hugs sister. 💏

[Chelle_ in reply to grace111]

I know. I have some shoulder pain too which really isn’t helping the situation at all! Thank you. Hugs right back xx

[vulnerable in reply to grace111]

Thinking of you xx

[grace111 in reply to vulnerable]

thanks dear. i appreciate that. love grace xoxo 🤗

[Mick1960]

Been doing that for almost 3 years

[Millie09]

Yep !! i have them most days chelle. Your not on your own . Keep that chin up .. sending big ((hugs)) .Linda xx

[Fastkat]

I’m having one of those days flat on back in bed. Craving water I can’t have and feeling sick at the thought of the next meal.

Be better tomorrow I hope and hope I’m more sociable 🤢

[Chelle_ in reply to Fastkat]

Oh no! Poorly and can’t drink water or fluid restriction? X

[Fastkat]

Yep. Stopped taking spirolactone because of dangerous potassium level so ascites becomes a problem and more drains! So try to stick to 1L per day including protein drinks.

Sorry just moaning!

Hope your all as well as you can be x

[Chelle_ in reply to Fastkat]

Moan away. I am on spiro and fruesomide have been for just over 4 years now. So I am fully versed with the ascities issue xx

[Hidden in reply to Fastkat]

My husband's liver doctor took him off spironolactone and put him on amiloride 2 tablets 5mg twice a day, so on that and furosemide - still supposed to check potassium levels every 3 months or so.

Just moaning is understandable.

Best wishes,

Mary

[carllovatt]

Love 'n' hugs chell we must all be due some good stuff soon

[Chelle_]

Teary day today. I had a bath earlier thinking it’d make me feel better....I don’t think it did I just think I’ve got sadder or more pissed off as the days gone on. I’m tired.....tired of telling people I’m fine, tired of waiting for the phone to ring, tired of being tired.....I feel like I’m on a carousel and can’t get off! 😐

[vulnerable in reply to Chelle_]

Try to keep positive. Not easy. Had my husband take me to the beach today I gad to get away. Was glad to get out but not very fit for walk but nice blustery day here in N zirekand. Then feel down again when I got home. Trying so hard to be positive & not offend anyone tomorrow is a new day Chelle. I take it your on the Transplant list ? How long? Xxxx

[Chelle_ in reply to vulnerable]

I am on the transplant list waiting 14 months now....my call will come soon (I hope) x

[vulnerable in reply to Chelle_]

I hope so Chelle. Are you going to Kings? Is there a time period when work up was done and eventually get the call or is there a yearly review of all tests again?

[Chelle_ in reply to vulnerable]

I am at kings and I have an MRI & CT scan every 6 months and bloods often but nothing more than that. Although I am there tomorrow for Lung function because my spleen is pushing into my lungs

[vulnerable in reply to Chelle_]

Good luck for tomorrow. I keep you in my prayers xxxx

[vulnerable in reply to Chelle_]

Chelle hope your well today good luck for your appt xxxx

[Joolz1408 in reply to Chelle_]

Hi Chelle I will light a candle and wish you a speedy liver transplant.😇

[Faithfull in reply to Chelle_]

Sorry that made me cry sort thing I would ask

[vulnerable in reply to vulnerable]

Meant Northern Ireland

[Joolz1408 in reply to Chelle_]

I know that feeling...is today going to be a good day? The endless tablet taking routine 😷🙂joolz14

[Faithfull in reply to Chelle_]

Feel same never ending crying I'm ok not bath can't be arsed tired and insomnia four walls closing in your not alone but we are inside

[vulnerable]

I know Chelle I’m trying desperately to be in good form and not bring my husband & family down with me. It is so difficult to remain positive take care xxx

[Happyluckymummyof2]

Aww bad days suck don't they x I tend to get them quite often and want people to leave you alone and they just think you are rude !!.. Sending hugs x

[Faithfull in reply to Happyluckymummyof2]

Every day I need a break from myself I mean it

[Dldtx]

same here, Sometimes I think I got that “dang it can’t do that” syndrome, hell I can’t sleep, can’t lie still , can’t eat or drink that, can’t take that medication, can’t breathe, don’t want to hear how are you today 💩 ? etc .... Then someone shows up with a bright idea hell I can’t do that either. So I sit back and smile and bite my tongue best I can 😇

DLD 🤠

[Faithfull in reply to Dldtx]

That's so true but when im Lonlely there is no one even Samaritans blocked my number no I'm joking about that they are good

[Happyluckymummyof2 in reply to Faithfull]

Ha ha that made me smile x yeah everything you feel ajd you can't explain to anyone and unless they are in your situation they never will and that is hard hey x

[Faithfull in reply to Happyluckymummyof2]

I'm glad as I'm laughing at me own jokes insomnia!

[19581979]

Hi all

It is so hard when people ask how you are feeling and most people are only saying it to be polite.

Could always ask them do you really want to know? I do that occasionally. Being mean but the look on their faces is priceless. I get a bit of sympathy and then not asked for a few days.

I've started to go by the attitude, if you don't want to know don't ask. It is surprising how the greeting can change to just morning, do you want a drink of tea?

Gx

[Faithfull in reply to 19581979]

Like crap if we're honest or you get the ones who say omg you do really look bad u really let yours self go I really appreciate them ones who you ain't seen for years .

[Wendy57]

HUG x

[Chelle_]

So a better day today. Hospital was pretty straight forward, lung function followed by blood gasses.....did you know they take it from your earlobe now! 😳

[Dldtx in reply to Chelle_]

Hope that turned out good for you. By the earlobe did not know that , I also do those test every 6 months the lung function test (spirometry and lung volume tests) left lower side collapsed and it just all a mess with masses, looks like my pancreas is about finished working, as for the right side my liver is swollen pushing up the diaphragm into the lung all together learned I can’t exhale. And as for blood gases that was a arterial draw. Sounds like our 6 month test schedule is about the same my yearl test are in August.

🤠 DlD

[Hidden]

Hoping your days improve.

Best wishes, Mary

[tim90125water]

We all get good at doing impressions of being normal selves, sometimes the mask slips...we understand how you feel and so should your friends and family.

[Hidden in reply to tim90125water]

I know . Someone asked me the other day and then she said don't tell me , you feeling bloody sh.. !! I said yes, you got it in one!!, Xxxx

[Faithfull]

Feel like it everyday

[Faithfull in reply to Faithfull]

Like shit that's how I feel like somethings really could send me into a deranged lunatic !

When people say it could be worse !And I say yes and it could be better but it ain't

[19581979]

All those who are having a rough time of it I hope you feel better soon. For those who are having their average (but not brilliant) time I hope things at least stay the same, but preferably improve. For those having an up moment keep quiet and don't let the gremlins find out. Long may the improvement last.

I'm starting to feel a bit better from the bug, mainly just tired and not so extreme with the temperature.

The bug making me hungry has caused me to put on a couple of pounds, but hopefully I will soon feel up to being good again.

Gx

[Hidden in reply to 19581979]

Hi

Hope you get rid of that bug good and proper!! Please take care. Lots of love Lynne xxxx

[vulnerable]

Hi Chelle I’ve been ‘off the air ‘for a while - but my grandson has sorted for me how are you any updates or calls yet? When one passes onto transplant assessment at a given hospital what is the process when they call you for pre-assessment? What test are involved? How your well xxx