Sleep: Dear Sleep, I am sorry! Please... - British Liver Trust

British Liver Trust

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Sleep

Chelle_ profile image
32 Replies

Dear Sleep,

I am sorry! Please come back....I am sure we can sort out our differences....it’s not me that doesn’t love you....it’s my Liver. Eviction notice had been served.....

I’m sure we can work things out....we were ever so compatible 😴.....

On a better no I hope your all

Doing wonderfully 💛 x

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Chelle_ profile image
Chelle_
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32 Replies
Ninie profile image
Ninie

Hi your sense of humour is great !! But not nice if you cannot sleep. Keep well

Chelle_ profile image
Chelle_

Thanks Ninie. I think in our situations you just have to keep things light. I think I’ve waited 12 months so anytime in the next 12 surely....🙂 x

Wendy57 profile image
Wendy57 in reply to Chelle_

Chelle, this sums it up so totally. In my sleepless nights I decided to make the most of it and snuggled up in front of my log burner with a book or my knitting, a bowl of cereal and several cups of tea. Contemplating the sleeping world. Hug. X

in reply to Wendy57

Hi Wendy, I'm presently doing an online course about "Liver Transplant". These courses are run by FutureLearn, and this particular course is compiled and features staff from the University at Birmingham and includes a lot of helpful video information by staff at the QE. This course is FREE, but you can pay and receive a certificate afterwards. I'm presently doing week two, but I don't think it's too late to sign up.

I am now 14-months post and my operation was carried out at the QE, hence my interest. For further information please follow this link: futurelearn.com/courses/liv...

Good Luck

Wendy57 profile image
Wendy57 in reply to

Hi Richard. I registered for this course a couple of months ago, but thanks for the link. I am currently in week 2. It's really interesting to learn about the whole process in detail. I'm following "The Inns and Outs of LT" at the moment. There is another associated course starting in January which I plan to do as well. Congratulations on your transplant and I hope all is going well. Wendy.

in reply to Wendy57

I'm into week two as well. I've paid for the course and have the end of week exam to take. I think I need to go over those videos yet again before I attempt to give it a go. May I ask please where you had your transplant carried out?

Wendy57 profile image
Wendy57 in reply to

I had my transplant at the QEHB, Birmingham. After the compulsive CCU stay I went into my own room. It had floor to ceiling windows all along 1 wall. From the 7th floor I could see right across Birmingham rooftops for miles. I never shut the blinds and watched the sun rise and set for my stay. The nurses joined me to watch for the Northern Lights one night.

in reply to Wendy57

Hi Wendy, I too had my transplant done at the QEHB, and have now found you on the FeatureLearn site too. I'm now going through the week two videos again as I'll be taking the end-of-week test later today.

It must have been a wonderful view from your bedroom window. I had a shared room with 5 other guys. When I was able to get up, I used to walk to the lifts and sit in those chairs there looking out across the campus. I think that's when I truly understood just how precious life really is. I did a lot of reflecting and soul searching then. I think looking back, that transplant didn't just save my life, but also changed my whole perspective on a lot of things. One of those things is to no longer carry any bitterness in my heart.

Oh no, has it really come to this? Have you thought of seeing a sleep counsellor. maybe you can still sort this out. Many many years ago. I used to use self-hypnosis to put my body and mind to sleep. It's all about closing down parts of your body a part at a time. It may feel a little weird at first and it does help if you sleep alone. Just google "sleep relaxation self hypnosis".

Failing that, you could always get hold of a copy of the brexit manifesto, you'll be asleep by page two I promise.

Chelle_ profile image
Chelle_ in reply to

Ha ha. I use hypnosis tapes have done for about 4 years just my body doesn’t agree with them at times....I have tablets but I don’t take them often....

I might check out that manifesto next time I struggle! 😂

vulnerable profile image
vulnerable in reply to Chelle_

I feel your pain lol I cannot get to sleep at night even tho I’m sooooooo tired! I’ve been unwell lately and think I’m afraid to 💤 sleep! Also had an ERCP recently and the gas/wind I suffer on going to bed is unbelievable

Millie09 profile image
Millie09

Hi chelle.. oh how i know what sleep deprivation is like. When i try to explain to other people not so much family they just dont understand how or why the liver causes sooo many issues .. i have had sleep therapy ☹. Just does not work .have a sleep nap when you can .thats what i have to do .

Those 12 months have gone quick ! But i bet not so much to you. Fingers crossed not much longer xx

Emmabskin profile image
Emmabskin

Sleep just visits me briefly. An elusive character. xx

Smyally profile image
Smyally

Sleep. I remember that. Long time no see.

Identity75 profile image
Identity75

Can’t sleep = more time to eat Haribo

Every cloud.

Dulux profile image
Dulux in reply to Identity75

That well known ratio of haribo/sleep, I always ask in clinic what my ratio is as it’s a constant balancing act 🤣

Identity75 profile image
Identity75 in reply to Dulux

I try to leave my balancing act for when I’m not eating Haribo.

Dulux profile image
Dulux in reply to Identity75

Do you have a long pole and funny shoes for balancing? 😂

Identity75 profile image
Identity75 in reply to Dulux

Rollerskates and I opt for a small red umbrella with yellow polka dots.

Dulux profile image
Dulux in reply to Identity75

That’s a vision! Save that for the next book, a sleepless clown, a criminal and a traffic warden, history was about to be made! 😳😂

briccolone profile image
briccolone

To sleep, perchance to dream-aye that’s the rub.....

Jacksonfield profile image
Jacksonfield

My friend has liver cirrhosis and he often complains he can't sleep. Can anyone tell me why people with liver issues struggle to sleep? He is doing really great and acities has nearly gone :)

AyrshireK profile image
AyrshireK in reply to Jacksonfield

It just seems to be a very common symptom with cirrhosis - it is one of the key symptoms of Hepatic Encephalopathy therefore toxin build up might be a cause. Also the liver takes to do with all sorts of hormone regulation, temperature control and more and if it isn't working properly then all sorts of things combine to lead to sleep deprivation.

It is one of my hubbies major symptoms together with chronic fatigue - he rarely gets a full nights sleep and will lie awake for long periods in the night. What is wierd is that his sleep never refreshes him and he will often have a better day with more energy and concentration after a night where he's barely slept ........... if he gets what he now classes as a long sleep night - perhaps managing a sleep till 5am he then actually often feels rotten and worn out and requires a day time nap (which he'll manage no bother) but those don't refresh either.

It's often just part and parcel of having cirrhosis. :(

Katie

Jacksonfield profile image
Jacksonfield in reply to AyrshireK

Thank you Katie. I think sometimes when you get a good sleep you feel worse because you need more of that, and you get used to functioning on less. If its to do with toxins I guess the cleaner the diet the better. My friend is doing really well on his healthy eating though. Its interesting about the temperature control too as he is always cold but we thought it was simply due to how thin he has become. Best wishes to you and your husband x

dochar profile image
dochar

My God the more I read here the more I'm starting to realise how much trouble my liver is in, I haven't slept right in years and it rarely does me any good, I always feel tired and sluggish, I have to nap mostly in the evenings too, I just fall asleep for maybe an hour in the evenings and wake up groggy and almost worse than before.

Chelle_ profile image
Chelle_ in reply to dochar

I think if your concerned that you might have a problem with your liver then you really need to book an appointment with your GP. They can take things from there.

dochar profile image
dochar in reply to Chelle_

Thanks, I already had blood tests done, liver function isn't right is all they said, sent for ultrasound which was done last week, it showed Gallstones but written report isn't back yet so will see GP again then most likely, I'm very bloated too, feel like I swallowed a basketball.

Chelle_ profile image
Chelle_ in reply to dochar

Gallstones can have similar symptoms to liver issues. I wouldn’t make any assumptions until you have spoken to your GP. Stop googling stuff and wait for the answers.

dochar profile image
dochar in reply to Chelle_

Thanks, hopefully I'm just overthinking this, I do tend to worry a lot. How are you yourself?

Chelle_ profile image
Chelle_ in reply to dochar

Stop worrying. You can’t change what the scan has already picked up on not the news your going to get. Be sensible with diet and drink. I am ok. 13 months on the waiting list....doing as well as I can.

dochar profile image
dochar in reply to Chelle_

Thanks Chelle I really hope all goes well for you, I will hopefully hear some news soon. I have a lot to learn about proper diet, staying of drink and walking everyday will be no problem. I'm praying whatever damage I've done can be halted or maybe even reversed a bit with cleaner living. I've had a horrible year with health problems, hopefully 2018 will be better.

sheri44 profile image
sheri44

I'm struggling too sorry hunny its awful.im on zombie mode constantly xx

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