I'm sitting here all on me lonesome, well I've got the two little beasties that pretend to be dogs, the other half is away, and I've been reading some old posts both on here and FB and I've been watching some bits on telly and it's just making me realise just how lucky I am.
There are so many people out there in far worse positions and with far worse conditions, and as bad as UC & PSC is and the need of a transplant it falls by the wayside in comparison to some others.
No matter how bad I feel or how tired I may get I know there is always someone somewhere fighting a harder fight. I'm generally not one to wallow in self pity, I have my moments as I'm sure we all have from time to time but I'm never going to give up to this. This is one fight I refuse to lose.
Take care everyone. Look after yourself.
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Identity75
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The looking on what we do have and having a sense of humour will get us through the darkest of days and like you say always someone worse off than us, which is bloody awful, so we have to be thankful we have the fight in us 😀
As an ex nurse I have seen first hand the things people go through from young children to the elderly some unfortunately with no hope. At least we have hope and that's a powerful thing oh and not forgetting a sense of humour without that we would go insane lol 🤓
If I'm honest I do have times when the white flag is flying - not for my own health but my son's.
But knowing I could vent, swear and scream to people who understand frustration with doctors and getting some of them to listen, is what gets me through.
I don't have to come on here and moan, somehow knowing I could makes me feel less 'got at' and isolated by the problems.
So I guess I should say thanks for being there for me all of you.
A healthy body needs a healthy mind, the body needs fuel and exercise and I believe the mind does as well, I'm not talking about meditation in a tent in Tibet, but give that grey matter something to do, give it hopes and dreams not fear and worry.
A great post my friend may the haribo be plentiful wherever you are 😘
I agree dulux, it was my unhealthy mind that at times made me give myself an unhealthy body... I have beaten myself up so many times my medical notes are pages long... I stare at all the anxiety and depressive states and the alcohol detoxifications and the PTSD now and the word Fear from 1983, then 15 at school.. I look at it and think what!!! Time to change inside and out..it makes the things that are negative that are heading my way seem tiny... I will not have the last notes on my medical files be linked to alcohol nor anxiety one day.. Tibet sounds good, I miss meditation and forgot you can do it any place anywhere... I will remember that. Hope you are healing well.
A great post, very reflective on a journey full of twists and turns. It's never easy or straight forward, 3 weeks post transplant and it still hasn't sunk in for me or my partner, but it will.
Hi dulux, how are you 😊. Great news when I heard of your transplant .
I totally agree with you .having a healthy , positive mind set is so very important . Especially I think if your waiting for the call .. even more so post transplant . I don't ever wallow in self pity .it is what it is , and each day that I open my eyes I am grateful .take good care of yourself ☺
I'm good thanks, I think one of the next big steps will be reducing the steroids, they take an edge off me at the moment.
I'm looking forward to when I can do just a little more, I want to be able to cook the dinner and have a proper cuddle with my daughter without her worrying she might hurt me.
These will come, and before I know it I will be back in main stream life, I just will be going in a different direction to before, this experience has clarified all that is actually important and what is secondary.
Oh how I would love to think like you. I feel very self centred in my thoughts regarding my illnesses. I can't help it I'm so depressed and feel everything driving travel etc has been taken from me. I try to keep motivated but it is so difficult
You recognise that your not in a great place, have you looked for any help? As my motivational goals slipped through my fingers I had to adapt my goals, I'm post transplant, only a few weeks and I'm currently worst off body wise than I was before, my achievement today was walking about another 30 meters up a footpath, that kinda sucks when your 38! But I have to recognise it as an achievement, otherwise I would just stay on the sofa drinking tea. I know that if I keep on by mid next week I'll be at the cake shop, that's the reward!
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Well I've done it! Booked SKY DIVE to raise Liver Problem Awareness and to raise funds for The British Liver Trust and QE Hospital! 26th Oct
End stage liver disease and kidneys failing 
Coming Up To 2 Years Post Transplant 
Good news
