Lucky

[Identity75]

I'm sitting here all on me lonesome, well I've got the two little beasties that pretend to be dogs, the other half is away, and I've been reading some old posts both on here and FB and I've been watching some bits on telly and it's just making me realise just how lucky I am.

There are so many people out there in far worse positions and with far worse conditions, and as bad as UC & PSC is and the need of a transplant it falls by the wayside in comparison to some others.

No matter how bad I feel or how tired I may get I know there is always someone somewhere fighting a harder fight. I'm generally not one to wallow in self pity, I have my moments as I'm sure we all have from time to time but I'm never going to give up to this. This is one fight I refuse to lose.

Take care everyone. Look after yourself.

[Millie09]

So very true identity ; I too live on my own with 3 cats ..no other half I'm happy to say .

I am like yourself , I have so so much to be thankful for. I / we will not ever give in the fight .

You take care too ..

[Hidden in reply to Millie09]

Hi

You are both fantastic people, you should be proud of yourselves. Please take care. Lots of love Lynne xxxx

[Millie09 in reply to Hidden]

Hi Lynne , how are you now ? Aww bless you .. I just class myself like everyone else .. your a lovely kind lady .you take care hun xoxox

[Hidden in reply to Millie09]

Hi

Thank you so much. You are such a kind lady too. Please take care

Lots of love Lynne xxxx

[Millie09 in reply to Hidden]

Your so very welcomex.thank you

Lots of love linda xxx

[Brummi]

With you all the way on this. In the face of adversity look the enemy in the face , laugh then tell it to get lost....

[jojokarak]

The looking on what we do have and having a sense of humour will get us through the darkest of days and like you say always someone worse off than us, which is bloody awful, so we have to be thankful we have the fight in us 😀

[Gaynorlowson]

As an ex nurse I have seen first hand the things people go through from young children to the elderly some unfortunately with no hope. At least we have hope and that's a powerful thing oh and not forgetting a sense of humour without that we would go insane lol 🤓

[Chelle_]

Just got to keep on smiling and know it will all come together in the end....failing that eat Haribo right? x

[Identity75 in reply to Chelle_]

Always eat Haribo. Lol

[piggysticks]

Thankyou! For your inspiration.

[Hidden]

Thanks for sharing such a postive post and a great picture!

Best wishes,

BLT admin

[mrsmerlin]

If I'm honest I do have times when the white flag is flying - not for my own health but my son's.

But knowing I could vent, swear and scream to people who understand frustration with doctors and getting some of them to listen, is what gets me through.

I don't have to come on here and moan, somehow knowing I could makes me feel less 'got at' and isolated by the problems.

So I guess I should say thanks for being there for me all of you.

Rita xx

[Dulux]

A healthy body needs a healthy mind, the body needs fuel and exercise and I believe the mind does as well, I'm not talking about meditation in a tent in Tibet, but give that grey matter something to do, give it hopes and dreams not fear and worry.

A great post my friend may the haribo be plentiful wherever you are 😘

[Miche49uk in reply to Dulux]

I agree dulux, it was my unhealthy mind that at times made me give myself an unhealthy body... I have beaten myself up so many times my medical notes are pages long... I stare at all the anxiety and depressive states and the alcohol detoxifications and the PTSD now and the word Fear from 1983, then 15 at school.. I look at it and think what!!! Time to change inside and out..it makes the things that are negative that are heading my way seem tiny... I will not have the last notes on my medical files be linked to alcohol nor anxiety one day.. Tibet sounds good, I miss meditation and forgot you can do it any place anywhere... I will remember that. Hope you are healing well.

[Dulux in reply to Miche49uk]

A great post, very reflective on a journey full of twists and turns. It's never easy or straight forward, 3 weeks post transplant and it still hasn't sunk in for me or my partner, but it will.

[Millie09 in reply to Dulux]

Hi dulux, how are you 😊. Great news when I heard of your transplant .

I totally agree with you .having a healthy , positive mind set is so very important . Especially I think if your waiting for the call .. even more so post transplant . I don't ever wallow in self pity .it is what it is , and each day that I open my eyes I am grateful .take good care of yourself ☺

[Dulux in reply to Millie09]

I'm good thanks, I think one of the next big steps will be reducing the steroids, they take an edge off me at the moment.

I'm looking forward to when I can do just a little more, I want to be able to cook the dinner and have a proper cuddle with my daughter without her worrying she might hurt me.

These will come, and before I know it I will be back in main stream life, I just will be going in a different direction to before, this experience has clarified all that is actually important and what is secondary.

Gareth.

[Millie09 in reply to Dulux]

Glad to hear it Gareth , aww and you will do , give it time and them cuddles will be well flowing

Yes I understand completely what you mean about another direction .it really makes you appreciate the most important things in life however small .

You take care .. Linda

[Fs_26]

Good for you never stop fighting x

[vulnerable]

Oh how I would love to think like you. I feel very self centred in my thoughts regarding my illnesses. I can't help it I'm so depressed and feel everything driving travel etc has been taken from me. I try to keep motivated but it is so difficult

[Dulux in reply to vulnerable]

You recognise that your not in a great place, have you looked for any help? As my motivational goals slipped through my fingers I had to adapt my goals, I'm post transplant, only a few weeks and I'm currently worst off body wise than I was before, my achievement today was walking about another 30 meters up a footpath, that kinda sucks when your 38! But I have to recognise it as an achievement, otherwise I would just stay on the sofa drinking tea. I know that if I keep on by mid next week I'll be at the cake shop, that's the reward!

[mrsmerlin in reply to Dulux]

Slap face with a wet nipper time!

You are doing fantastically and the extra 30 metres is what percentage wise?

At 38 I had a major spinal injury and could only manage a few steps but it was a victory.

Now go and sit in the corner counting spiders for an hour.

Sucks indeed. Tut tut tut

Rita xx 😁

[Dulux in reply to mrsmerlin]

Being a bloke estimating distance and size is not my strong point! It was far enough!

Everyone's situations are so different I know my position and I recognise it's a great place to be, everyday I'm getting stronger.

I don't like spiders! Can I count prograf instead!!

Okay less sucking more walking, how's that!

Gareth x

[mrsmerlin in reply to Dulux]

Good boy.

You can carry on now that you have learned your lesson.

😂😂

Rita x