Actilax

[Cathy-anne]

Hi,I am a hep c survivor, I received tainted blood in 1984.I completed my 3rd treatment of 2 tablets for 6 months which I finished at the start of July.I found out I have stage 4 cirrhosis with a huge liver and spleen.when I started the treatment I was 61kilos now I am about 68kilos.I don't have ascites but I was blowing up like I had it so the specialist at the Austin Hospital in Victoria Australia took me off actilax.Now I am on coloxyl and senna and 2 sachets of apo-macrogol.However I am still not using my bowels enough and I am concerned that not taking actilax how is the ammonia not going to my brain? I am on pretty high doses of fluid tablets twice a day.Has anyone else put on a lot of weight? I am forgetting how to spell and forgetting simple things.I am 54.I have never really drank alcohol and haven't for over 5 years.Before the treatment took its toll on my organs I used to wee all the time and I don't any where near as much as I did and I used to use my bowels at least 1 or 2 times a day.My liver has a small part that works so I am not put on the transplant list.Sorry for the essay but I am worried as we are burying my best friend who died of liver cancer on Thursday.Can anyone give me ideas about using my bowels more without damaging my liver more. And are most people on actilax ? I apologise again for the essay.i am so happy finding this site.And wish you all good health.Cathy 🙏🏻🙏🏻

[pear-shaped]

Dear Cathy,

Have you been assessed for Hepatic encephalopathy? It sounds like you may be having symptoms of this - do ask your consultant.

The toxins will find its way to your brain but it does depend on how much - I know that laxatives work to clear the toxins but cannot advise on the medicines you have mentioned as I have not really heard of these.

I would definitely mention the forgetfulness to your consultant.

Keep us updated.

Yours truly,

Pear