I was just told today that I have nrh. It has been a long journey to diagnosis. I developed psoriasis. Then started having symptoms of crohnes. Then they noticed my spleen was enlarged. Then they discovered portal hypertension. I have had lots of bleeding in the bowels, but the assumption has been crohnes. As of today they say nrh. They may send me to NIH. I only live 2 hours from that leading usa research hospital. I admit to some shock and confusion. How did crohnes become nrh?