Hi folks. I'm in need of a bit of advice please...
I started azathoprine 50mg last Thur which is only a week... since Sunday I've been very soar all over. Feels like the way you do with a flu... I'm eating and drinking ok. Just so soar, even to touch. Xx
How long ago did you have your transplant?
I haven't had one. I was diagnosed with AIH And have been on Pred' for the last 15months.
Maybe you should go see your doctor. Maybe you are just adjusting to new medication. I was on it pre transplant for AIH and am on it post transplant and I havnt had that problem but everybody's differentx
Thanks. Yes I've got weekly bloods tomorrow. So will try and get an appointment too..... I've not taken any pain relief in over a year... should I take some paracetamol? Thanks xx
Should be ok to take paracetamol I did in hospital when I was in pain , as long as you do not take more than the recommended dose .
Will give it another hour or so and see how I go. Thanks xx
Aza doens't suit some people and they have a bad reaction to it and have to be put on alternative immune suppressants.
I see you are already on the Facebook group at :- facebook.com/groups/AIHorgU... & receiving some advice there.
My hubby has cirrhosis due to AIH but isn't on an immune suppressant because his AIH isn't active.
Katie
I started Azathioprine the end of June last year after being diagnosed with AIH. They started me on 60 mg of Prednisone first, then a few weeks later added 50mg of Azathioprine. I never did feel sore but have experienced the easy to bleed and bruising problems on my arms; also, hair loss, although that has finally slowed down. I take lots of supplements now that I never took before: Vit E, Magnesium, Calcium, Vit D-3, Biotin and B complex. I make sure I eat a healthy anti-inflammatory diet, too. Gluten-free, hardly any sugar, no processed foods, no dairy, no soy, mostly stay away from Nightshade family and eat organic fruits and veggies. I don't know if this helps or not but I figure it doesn't hurt. I have also continued to work outside as a Permaculture gardener. I am now on 10 mg of Prednisone and 75mg of Azathioprine.
So glad your doing well. I too believe in looking after our bodies and using supplements. Also exercising! Just at the mainute it's tough with how soar I am. Feels kinda like a flu... Hopefully it will pass soon.. keep up the good work. Thanks xx
I did have some nausea symptoms when I first started taking Azathioprine. After reading posts on this forum, I started taking it after dinner in the evening. Took the Prednisone after breakfast. I felt a lot better after that small change.
Yes I've just started to do the same. Thanks xx
Dear Jacquie1975
We'd suggest you get in touch with the doctor/medical team who prescribed it for you just for reassurance/advice on whether this is ok. Everyone can react differently to new medications but for peace of mind it's worth checking.
Best wishes
Carol
Thanks BLTcarol... yeah been got Gp who've ran some bloods. Thinking it could be viral as my kids had sickness last week. Xx
I;m feeling crap - head-wise
New Member question re: Trans-jugular Biopsy
