Endoscopy AGAIN

So tomorrow I have another endoscopy, this is my 3rd in 8 weeks, I don't think there will be any banding this time, I don't feel like there will be anyway. I do however have 'Portal Gastropathy' this means that I have snake like skin in my stomach. It's a common cause of Cirrhosis of the Liver and Portal Hypertension.

I do worry about the damage they are causing with all these tubes being shoved down my throat...are they doing more harm than good?

So tomorrow could be band 30+ and will be my 12th Endoscopy (I think...) I wish for this call to come soon so I don't have to do this anymore - certainly gets to you after a while :-(

32 Replies
oldestnewest

Oh chelle I feel your pain they hurt don't they, and you think we would get used to them its when I start panicking and the nurse says oh they don't hurt and i reply you had one then and they say no classic. it really does get you down at least you can offload on this site to people who know what your going through. I hope you get your phone call soon good luck for tomorrow. Enjoy banana spray, 😬

5 likes
Reply

Oh I don't have the banana spray; haven't for a long time; can't stand it...like really can't stand it!

I don't find that they hurt unless they band a lot at the time of being there, I find it incredibly uncomfortable....but it's fine I know that come 1900 tomorrow night it will have all be done!

6 likes
Reply

Best wishes chelle x really feel 4 u x

5 likes
Reply

Thank you x

1 like
Reply

Good luck Chelle. Horrible isn't it.

I sort of had a revelation one time when I was in hospital. I made a fuss about another biopsy because I've had some terrible experiences and ended up in a lot of pain before. So anyway some random consultant (not my usual) was doing the daily rounds and basically told me I was messing about, it wasn't going to look good on my record and they expected complete compliance if I was to get on the list. Probably didn't but he looked like he was getting a buzz out of telling me this.

Anyway that did the trick for me, I was furious and just took anything that came at me. Not sure if that was his intention but from that point on I almost looked forward to proving what I was made of.

4 likes
Reply

lol reverse phycology....flaming doctors! Pleased to say no banding today. My ulcer is clearing up Nicely too...

3 likes
Reply

Hi Chelle,

Really feel for you. I've only had a few over time, nothing compared to you (isn't that a song?) anyway, grit your teeth, so to speak, you can do this, I'm not ex forces myself but I've known plenty over the years and you guys are made of stern stuff. All the best. Take care.

5 likes
Reply

We're only made of stern stuff when we are backed up with 500 opppos with guns in there hands...lol I have you lot which is almost the same!

2 likes
Reply

Hi chelle... i am keeping everything crossed for you thst tomorrow will be your last .I have not had any banding yet as i have only started seeing my hepetologist in 9 yrs 🤔. I have had an endoscopy done after I refused 5 times to have it done. I detest them. Your a strong woman and I have every faith you will be fine. Good luck.hun x

4 likes
Reply

You're fantastic. I had one years ago and was horrible experience. My liver doctor has asked me many time to do it because I have strong stomach pain but every time I delete the appointment. Wish I have your determination.

Good luck.

Rita

1 like
Reply

lol I hope your doing ok x

1 like
Reply

Thank you.fingers crossed x

2 likes
Reply

Your very welcome hun x hope all went ok today 🤞

1 like
Reply

Good luck hope it's your last x

2 likes
Reply

Thank you x

1 like
Reply

Hi Chelle, Thinking of you today and amazed how many bandings you have had. Are you on a transplant list?

I too have been found to have portal hypertensive gastropathy with it's snake like skin (quite pretty really!!) Fortunately haveI not have as many endoscopies as you (only 6 or 7) I think and so far no bandings at all.

3 likes
Reply

It is quite pretty. And no banding I'm pleased to say today so relatively quick really. Back again in 6 months!

2 likes
Reply

You are so upbeat Chelle! It brightens me up when I read your posts & replies. You are a total ray of sunshine my dear, despite everything xxxx

2 likes
Reply

So no banding today....yay small mercies. I'm back in 6 months unless I've had my TX...then he just told me to cancel and enjoy my life....he was certain he wouldn't see me. Be nice if he could put a wager down on it...x

4 likes
Reply

I'd put a bet on you any day lass x In your favour, of course x

3 likes
Reply

That’s lovelu. Thank you

Reply

Hi. I had a lot of banding pre transplant. It does leave some side effects but my understanding is that it's very much necessary to minimise the risk of internal bleeding which is potentially life threatening. Stay strong! Good luck. ps I presume you are on the transplant waiting list in which case there really is light at the end of the tunnel. Finally 15 months after mine I am so much better and stronger, its amazing

2 likes
Reply

Thanks you LiverLover. Yes I’m on the waiting list. I have been for almost 11 months! I know there for good and not bad but it doesn’t make me like them anymore! Lol.....especially when they blow my tummy up, it’s big enough all ready!! 😂

Reply

His chelle I'm new to this page and read your story. I hope you are doing well.

Reply

Thank you. I’m doing well I tend to ignore what’s wrong with me most of the time....

Reply

My daughter is six and has banding done every two month's. We are waiting to go to the UK to have a meso Rex shunt which will bypass the blockage in her portal vein . The banding is getting harder the older she is getting. I wish you luck and hope you are not waiting much longer. X

Reply

Poor sod. I have great sympathy for her. I’ve never heard of her procedure. I wish you lots of luck. I hope this is light at the end of the tunnel for you both! X

Reply

It's very similar to a heart bypass and relatively new. Only 5 children from Ireland have had it done. Not sure but the UK. I can't seem to find anyone online who had same procedure done

Reply

Hi, yep they are know fun just been told I have to have another one and a colonosopy not happy about that.

2 likes
Reply

No I don’t think that I’d like that either. Lots of luck and I hope you only hear good news!!

1 like
Reply

anyone know how severe liver is after fibroscan score rating of 21

as since that scan I've been left with no proper prog/diagnosis

about cirrhosis and treatment for severe pain stabbing sharp pains and over my right shoulder a radiating dullish pain but worrying all the same.

Reply

Russeves, Post your question on the main Page, you should find people have a few answers for you. Only few people will see it if it is linked to my comment....

I’ve never had a firbo scan I’m afraid so can’t offer any advice x

Reply

You may also like...