So tomorrow I have another endoscopy, this is my 3rd in 8 weeks, I don't think there will be any banding this time, I don't feel like there will be anyway. I do however have 'Portal Gastropathy' this means that I have snake like skin in my stomach. It's a common cause of Cirrhosis of the Liver and Portal Hypertension.
I do worry about the damage they are causing with all these tubes being shoved down my throat...are they doing more harm than good?
So tomorrow could be band 30+ and will be my 12th Endoscopy (I think...) I wish for this call to come soon so I don't have to do this anymore - certainly gets to you after a while
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Chelle_
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Oh chelle I feel your pain they hurt don't they, and you think we would get used to them its when I start panicking and the nurse says oh they don't hurt and i reply you had one then and they say no classic. it really does get you down at least you can offload on this site to people who know what your going through. I hope you get your phone call soon good luck for tomorrow. Enjoy banana spray, 😬
Oh I don't have the banana spray; haven't for a long time; can't stand it...like really can't stand it!
I don't find that they hurt unless they band a lot at the time of being there, I find it incredibly uncomfortable....but it's fine I know that come 1900 tomorrow night it will have all be done!
I sort of had a revelation one time when I was in hospital. I made a fuss about another biopsy because I've had some terrible experiences and ended up in a lot of pain before. So anyway some random consultant (not my usual) was doing the daily rounds and basically told me I was messing about, it wasn't going to look good on my record and they expected complete compliance if I was to get on the list. Probably didn't but he looked like he was getting a buzz out of telling me this.
Anyway that did the trick for me, I was furious and just took anything that came at me. Not sure if that was his intention but from that point on I almost looked forward to proving what I was made of.
Really feel for you. I've only had a few over time, nothing compared to you (isn't that a song?) anyway, grit your teeth, so to speak, you can do this, I'm not ex forces myself but I've known plenty over the years and you guys are made of stern stuff. All the best. Take care.
Hi chelle... i am keeping everything crossed for you thst tomorrow will be your last .I have not had any banding yet as i have only started seeing my hepetologist in 9 yrs 🤔. I have had an endoscopy done after I refused 5 times to have it done. I detest them. Your a strong woman and I have every faith you will be fine. Good luck.hun x
You're fantastic. I had one years ago and was horrible experience. My liver doctor has asked me many time to do it because I have strong stomach pain but every time I delete the appointment. Wish I have your determination.
Hi Chelle, Thinking of you today and amazed how many bandings you have had. Are you on a transplant list?
I too have been found to have portal hypertensive gastropathy with it's snake like skin (quite pretty really!!) Fortunately haveI not have as many endoscopies as you (only 6 or 7) I think and so far no bandings at all.
So no banding today....yay small mercies. I'm back in 6 months unless I've had my TX...then he just told me to cancel and enjoy my life....he was certain he wouldn't see me. Be nice if he could put a wager down on it...x
Hi. I had a lot of banding pre transplant. It does leave some side effects but my understanding is that it's very much necessary to minimise the risk of internal bleeding which is potentially life threatening. Stay strong! Good luck. ps I presume you are on the transplant waiting list in which case there really is light at the end of the tunnel. Finally 15 months after mine I am so much better and stronger, its amazing
Thanks you LiverLover. Yes I’m on the waiting list. I have been for almost 11 months! I know there for good and not bad but it doesn’t make me like them anymore! Lol.....especially when they blow my tummy up, it’s big enough all ready!! 😂
My daughter is six and has banding done every two month's. We are waiting to go to the UK to have a meso Rex shunt which will bypass the blockage in her portal vein . The banding is getting harder the older she is getting. I wish you luck and hope you are not waiting much longer. X
Poor sod. I have great sympathy for her. I’ve never heard of her procedure. I wish you lots of luck. I hope this is light at the end of the tunnel for you both! X
It's very similar to a heart bypass and relatively new. Only 5 children from Ireland have had it done. Not sure but the UK. I can't seem to find anyone online who had same procedure done
Hi, yep they are know fun just been told I have to have another one and a colonosopy not happy about that.
Russeves, Post your question on the main Page, you should find people have a few answers for you. Only few people will see it if it is linked to my comment....
I’ve never had a firbo scan I’m afraid so can’t offer any advice x
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