Hi all hope everyone is still fighting as best they can.
It's been a long stressful few months with 2 weekly ascetic drains, trips to Birmingham and living with all that entails.
He's had his assessment last month but wasn't listed yet. They need to make sure he's fit enough for theop to review again in October. He has been told to eat a high protein diet to build up muscles and strength. The anethiatist saw a abnormality not his heart scan that they want to check out so he's been referred to a cardiologist near where we live which is good. ( Referral only happened last week as I chased it. Administration error again)
Trying to be positiveand hope that October's decision will be a positive one. Scariest thing to hear from specialists doctors that your husband defiantly needs a new liver to survive and may not be fit enough to have the opportunity of a new one.
You learn so much about things.
Who your friends really are!! That's a tough one and also that the best person to fight for us is us. Ask whatever you want to ask, don't be afraid to challenge and chase hospitals and doctors.
Remember that the person who knows the illness the best and how if affects you is you.
Love to all