New Territory: Have just seen my... - British Liver Trust

British Liver Trust

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New Territory

bunny2be profile image
20 Replies

Have just seen my heptologist.After clearing Hep C on the trial my fibroscan has dropped from 19.5 to 13.6 to 11.9.over a year.He said they are seeing this  often.When he was trained they thought cirrhosis (scarring) was irreversible but now it appears the scarring is"ameliorating"and my liver is reconfiguring ,reckons I can get to 10.These new drugs are amazing ,Dr says we ARE in new territory (I want 7!)

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bunny2be
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Tess74 profile image
Tess74

Thats brilliant, I'm just into my 7th week of new treatment so this has made me really hopeful that my fibro score might go down too!!! Which treatment trail were you on? Oh & congratulations on clearing the hep C & for  the amazing healing liver :) 

bunny2be profile image
bunny2be in reply to Tess74

Sofosbuvir and ribavirin 24 weeks

I think I remember hearing or reading something that the liver is better at regenerating itself than previously thought. That is promising. I'm entering my sixth week of treatment and have noticed that the pain I normally have in my right side is lessening, so I'm hoping that means any inflammation I've had is dying down. Good luck with getting to 7 – and hopefully even less!

bunny2be profile image
bunny2be in reply to

New drugs u should be clear

SAMBS profile image
SAMBS in reply to bunny2be

What is name of the new drug? 

Bolly profile image
Bolly in reply to SAMBS

I think they are talking about drugs that cure Hepatitis C SAMBS, which is one thing you dont have, lol!

dooley1 profile image
dooley1

That's fab news I bet you are thrilled. It's exciting to know that as long as conditions are right that the cirrhosis can reverse. My consultant told me that too but not all docs are aware of this especially GPs.

Good luck with the next one! 😃😃😃

SAMBS profile image
SAMBS in reply to dooley1

I rember being told by teacher in school when doing human biology lessons that the liver is Is the only self regenerating organ in the body! That's why I've been less concerned by my condition and rapidly changed my lifestyle in terms what I ate. That was over 50 years ago, so I'm amazed that so few people, docs especially are unaware of that fact! 

Alcohol is probably the most "self inflicted" cause of liver disease these days, which it wasn't waŷ back then, except perhaps in Scotland where whiskey, quite high alcoholic content, was drunk more than the other. For women today wine and/or lager which teenagers drink, may well be the highest cause. 

dooley1 profile image
dooley1 in reply to SAMBS

It's well known that the liver regenerates itself but up until recently it was thought that it was only up to a point. Once it got to actual Cirrhosis it was past the point of no return but new evidence suggests that it is possible under the right conditions to actually reverse cirrhosis too. 👍🏼

TimothyB profile image
TimothyB

Congratulations! Be patient, it took me four years to see a fibroscan score of 44 drop to 5.5.  These new drugs are amazing.  All you need to do is live a healthy lifestyle. Good luck!

Tess74 profile image
Tess74 in reply to TimothyB

44 to 5.5!!!!! WOW!!!! well done :) 

bunny2be profile image
bunny2be in reply to TimothyB

Do they say u are cirrhotic ?

TimothyB profile image
TimothyB in reply to bunny2be

Yes Bunny2be, I had fibroscan as well as a biopsy, both confirmed that the liver was cirrhotic. The consultant even suggested that without any treatment, it would only take 1.5 years to get to decompensation/liver failure stage, then it would become a life and death matter. I was very lucky to be picked up by NHS. 

bunny2be profile image
bunny2be in reply to TimothyB

Sorry should have been clearer, so is your liver now considered totally cured and cirrhosis free?

TimothyB profile image
TimothyB in reply to bunny2be

It will need a biopsy to further confirm. I am not going to have that again soon as it is quite painful. 

bunny2be profile image
bunny2be

So where are u now

Frances61 profile image
Frances61

What new drugs are you referring to please.  

bunny2be profile image
bunny2be in reply to Frances61

The new hep c antivirals mine were from Gilead

Newengland01 profile image
Newengland01

Excellent 

ballie52 profile image
ballie52

They are now moving forward very fast to treat all people  with Hep c...i was told only a few days ago by a liver consultant  that i would have needed  a transplant  in the near  future if it wasn't  for me getting treatment  with Harvoni. .i am 8wks into  treatment  and undetectable. 

Feeling great to put a stop to any futher damage... thanks to this life saving drug i now have a future! 

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