Please help: My husband has left me... - British Liver Trust

British Liver Trust

38,081 membersβ€’18,674 posts

Please help

β€’78 Replies

My husband has left me tonight because of my condition. Have brought wine, phoned police however,he left me, it is too much can't et out of this, please help I can not believe it all, everything

78 Replies
β€’
SweetJaney profile image
SweetJaney

Oh Mellow1 that is such sad news, maybe he just needs a break. It puts such a strain on everyne in the family. Give him a day to get a break and both of you to gather your thoughts. Please don't drink the wine, u know that isn't gonna do you any good. Get a warm drink and sit down. Do u have a friend who you could call, or better still a friend to come and just chat? Massive hugs x

RodeoJoe profile image
RodeoJoe

Why have you phoned the police?

matt137 profile image
matt137

Firstly don't drink the wine. All that will achieve is more damage, more symptoms, a bad nights sleep and guilt for days and days.

Have an early night.

Things are much clearer in the morning after some sleep.

Best wishes x

gamesmaker profile image
gamesmaker

I feel so sorry for you. All I can ask is that you do not drink the wine, but phone the Samaritans - they are trained to help in all sorts of situations. Thinking of you and Good luck xxx

Mellow1 ❀️❀️❀️❀️ oh darling xxxx please don't have the wine - you know that you shouldn't - as a carer myself I can totally empathise with him xxxx it is so so hard watching your loved one deteriorate before your eyes - he maybe just needs a bit of 'space' - why have you called police ??? Was it an argument ?? I am worried for you both xxx please call a family me never or someone nearby xxxx don't give in - be strong so when he comes back he knows your still the person he married xxxxxx

Are you okay? I hope your safe and found someone to talk to.

Thinking of you. Xxx

Anne48 profile image
Anne48

Mellow1, whatever happened? You were doing so well, improved bloods, walking the dog. Hope you are OK and feel a bit better this morning, I am sure everything will sort itself out, it usually does. If you did drink the wine, it was just a 'blip', don't let it play on your mind too much, you are stronger than that! Thinking of you. Anne XX

dckimberly profile image
dckimberly

Hope your ok..so sorry..

Wether you drank or not..there's an AA toll free hotline in every country, if your an alcoholic. Drinking will only hurt you and certainly not bring him back.

Caring for someone who is ill is very hard on caregivers..

They need breaks also, and someone to talk to who is not you.

We don't know people's back stories on here, only what you tell us, so I'm hesitant to say much more, other than I'm sorry your hurting right now.

Why call the police? To be honest, it looks, from your writing, like you've already drank. And that's ok. But don't drink anymore. If anything, that will make matters worse and probably enrage him further.

Like I said, your writing seems a bit off, so I'll wait and see.

But I do hope your ok, sweetie. I really do.

Thinking a good thought,

Kimberly

liveronmymind profile image
liveronmymindβ€’ in reply todckimberly

Hi Kimberley xxx You're an angel xx

susieanna profile image
susieanna

Hi Mellow 1. sorry to hear this; get as much support from those on here as you can; if you have drunk the wine, so be it, but start afresh from today; gather your thoughts and try to remain calm; see how things turn out today . if you have a counsellor re support , then call them today, wishing you well. x

Poblebach profile image
Poblebach

Hi there, firstly I'm so sorry to hear of your situation It will not be easy for you right now, you must get in touch with family or friends for support and maybe a visit to your GP but talking with someone will help you put this situation in prospective It will be difficult, take care.

Jahida profile image
Jahida

Hi mellow,

I'm so sorry. Your husband seemed so prepared to helping you and so in love with you. Perhaps he needs some support too? Someone else to speak to regarding this situation?

Please get help and do not drink. You have two beautiful children to live for. They need their mum around. Use them as your motivation! I know they are not around but the more better you get, the more time you will get to spend with them.

Get in touch with friends and family and be vocal about help!

Good luck x

Raksha1964 profile image
Raksha1964

What a shock mellow. Please don't drink the wine, it won't help you, or health or your mind. Can you call a friend to pop round n have a natter or even better stop over? Perhaps he just needed time to get his head together & a little space. You both need support from out side your GP will be able to help, please see him asap. He loves you uncondionally & is probably finding it hard you suffering whilst is hands are tied, so to speak. I have force my partner (my care giver) to go out daily, if only for a walk or a natter with his friends so he can have his time to.

Hope all goes well for you both

Hi all, mellow1 is OK and I'm back, toxins are evil things but everyone's wagon can hit a bump in the road , you are all such great support ☺

Paulio profile image
Paulioβ€’ in reply to

Hi.

I hope you don't mind me asking, but why did you phone the Police?

RodeoJoe profile image
RodeoJoeβ€’ in reply toPaulio

I think I might be able to answer that. I think "Mellow1" and "husband" might actually be the same person. I think this is someone who is crying out for help, but unfortunately this is not the forum or indeed is any forum the right place for this.

I have great sympathy for "Mellow1" who I don't think is coping mentally, but I can only suggest she get PROFESSIONAL help.

β€’ in reply toRodeoJoe

I can assure you that mellow1 and me husband are 2 people, man and wife.

RodeoJoe profile image
RodeoJoeβ€’ in reply to

Then please can you get some help as clearly last nights post was a cry for help. It's highlighted by the fact that only last week we were getting posts from you about how you both met.

The whole thing sounds unstable, and it's worrying to read about.

cityman62 profile image
cityman62β€’ in reply toRodeoJoe

Absolutely,to be honest these posts look slightly 'fake',I'm not sure it helps anyone to post'lovey dovey'posts one night,and then,'help me,I need the police',next time,I would respectfully suggest it might be better to only post with productive,rather than drunken destructive posts in the next breath,this forum is open to being abused,if it is-as I suspect,its a disservice to regular posters...

Jahida profile image
Jahida

It will actually scare a lot of people that want to join this forum for help and advice. I've had very bad HE and I can assure you, I was in no state to actually even use my phone!

Please get some help because you are struggling. Maybe struggling to come to terms with what is happening? It is a very hard situation to be in and I really hope things will get better for you soon.

chandler54 profile image
chandler54

Are you feeling any better now x

Yes I am thank you. I just got myself in a right state with frustration. Thanks again for asking.

X x

matt137 profile image
matt137β€’ in reply to

Take care of yourself Mellow :) :)

β€’ in reply tomatt137

Thank you, matt. How are you doing?

X x

matt137 profile image
matt137β€’ in reply to

Not too bad thanks flower.

Still not had a drink... im on the Becks blue when I need one.

Symptoms seem to come and go, but Ive still got pains in my liver area. Also really achey muscles.

Im desperate to get some blood results but ive been told to wait another week as blood pressure mediaction was increased.

I just need to know whats going on now. :)

xx

β€’ in reply tomatt137

I send you good wishes. It is horrible to wait. You seem a lovely person. Keep in touch.

X x

matt137 profile image
matt137β€’ in reply to

Sure will :) x

briccolone profile image
briccoloneβ€’ in reply tomatt137

dont forget that muscle aches can be a symptom of alcoholic hepatitis which can weeks/months to subside...

matt137 profile image
matt137β€’ in reply tobriccolone

I didn't realise that Briccolone.

I gather that hepatitus is inflammation. Could that also give the impression my liver looks 'fatty and course?

Thanks for your help

briccolone profile image
briccoloneβ€’ in reply tomatt137

one of the things that confused me up until recently was the interchangeable use of inflamed/fatty/enlarged/swollen etc.......when you drink the liver enlarges to deal with the toxins-hepaptitis results whether mild or serious. All the stuff youre going through happened to me I suspect I'm not far off where you are at present although I've had quite long periods of abstinence in recent years. I suspect by staying off the booze for a while you'll be feeling quite a bit better over weeks.

matt137 profile image
matt137β€’ in reply tobriccolone

Thanks Briccolone. I do hope so. And thanks for the info it's very encouraging

Alikatty1 profile image
Alikatty1

I've not long joined here but mellows posts were what drew me to join this forum / support. I know that things have taken a bad turn for you mellow, but please look after yourself, try not to drink, as you know the importance of keeping as well as you can be. I hope this is just a hiccup for your husband and just needs breathing space and you will be fine again. Vent on here or to support agencies as much as you need.Thinking of you xx

cityman62 profile image
cityman62

Not happy with your posts to be honest, this isn't mills +boons territory,this is about people slowly dying-for various reasons,of liver disease-and bearing it generally with a great sense of humour too,please respect that.

Mama41 profile image
Mama41β€’ in reply tocityman62

That's a bit harsh. If you don't want to read someone's posts then just scroll past them....

@mellow1 I hope things are better for you tonight.

cityman62 profile image
cityman62β€’ in reply toMama41

Your absolutely right,it is a bit harsh,but then so is life-and death too,equally,scamming vulnerable people,like I said,I'm probably wrong,but ,Then again.....if you don't like my mistrust-again,scroll on by....

β€’ in reply toMama41

I agree with you that other post was harsh!!!!

cityman62 profile image
cityman62

No answers to Several requests on why ,if as you say,your husband left you why you called the police? Could you elucidate please???

Jahida profile image
Jahidaβ€’ in reply tocityman62

I think the husband replied saying it was the toxins speaking. He didn't say it clearly but he referred to 'toxins can be evil'.

Even so, I agree that this is not s casual forum. It is a place where people come for clear advice or support and especially knowledge.

I'm sorry if I sound rude. I have myself gone through HE and I remember how exhausting it was. I could not even spell or anything or use my mobile phone. It probably affects each person differently but I definitely wouldn't have come on a forum and be able to create a thread and then type all this.

I really hope Mellow1 is a real person and will seek real support.

cityman62 profile image
cityman62

Call me an old jaundiced cynic,I'm just waiting for the 'my dear husband has being bailed for Β£500,can any of you nice peeps help 'us',please.....:-0

Bolly profile image
Bolly

Perhaps Mellow's husband would create his own profile and post as that. Then there might be less confusion as to which persona is writing the posts.

Catfishjumpin profile image
Catfishjumpin

Thats too much self created drama or it was a toxic feed to the brain from your organs. As I recall last week you said you had two months to live. Drinking can cause your liver to fail, drinking will increase mental toxicity, have you not had any near death experiences with this disease. I do not appreciate your disrespect for your life or dragging us thru that, you now sound like " tisk, was nothing folks"...

I have almost bled to death 3 times so I take my life seriously, its sweet and precious to me. I do not fight people, its a waste of your life woman.

Maybe he lefy because you went crazy, what can he do but try to be a caretaker husband, he is not a paid professional.

bustabo profile image
bustaboβ€’ in reply toCatfishjumpin

HI I have just come across this sight. I have no idea what is going on in the beginning of this sight regarding husbands and police etc. But i have cirrhosis of the liver and a few weeks ago vomited blood, i went to hospital luckily it was a small bleed, but two weeks ago i was rushed to hospital i vomited 7 litres of blood they rushed me to ICU where they induced a coma. I was then rushed to London free hospital. I bled three times my family were called in Xmas eve and basically told after first bleed there is a possibility i will die, i bled another two times they were going to use the tips method but amazingly i pulled, thru. I live on my own with my 15 yr old son and when i was released i was just told i could go home. i have no support network and have been crying most days thinking it could happen again at any time,and that could be the bleed that kills me. It is a very lonely and terrifying place to be,the not knowing i wish i could look inside myself to see what's happening before it goes wrong. I feel like a ticking time bomb. I wonder if that feeling goes as time goes on with no more bleed?, the worst thing is u don't feel it coming i am in my thirties and the thought of leaving my son without his mum terrify's me more.I feel quite relieved that i found this sight and am not alone.

β€’ in reply tobustabo

Hello,

A ticking time bomb - your words are my thoughts.

Wishing you the best

X x

Catfishjumpin profile image
Catfishjumpinβ€’ in reply tobustabo

I am so sorry. I have bleeding varcies and what happened to you happened to me but they banded my varcies and for almost two years they have been fine. I am not sure how Tips works. I am 64 so I really understand how you are frightened and do not want to leave your son. Where did your bleed originate from? Are you already in the care of the doctor when the bleed out happened? I am on a small amount of blood pressure medicine to keep the pressure down in my varcies so they do not burst again but yes I too live knowing this is the way I could die. I was alone when my bleed out occurred and I also had a brain sodium issue so I was in spasm and contraction during my bleed out. It went on for quite awhile. I had to resign myself to the fact that I was witnessing a drama in which I could die and I was the central actor and the only audience. Let me know how you are getting along. My heart goes out to you. Your doctors do not have seem to have supplied you with much support or information. I too live alone.

β€’ in reply tobustabo

Hello bustabo, i think i understand what You are going through, my husband has chirrosis and we found out due to a bleeding episode like the one You describe, he almost died, i found out that he cope with this fear with meditation and now yoga, it helped him a lot , he is much easy going with hes fears and reading the Dalai Lama teachings helped him a lot, trust yourself and seek help when You are in an episode of fear, my best wishes, is really nice that your son is with You, he inspires You to keep walking and give the fight. Clariur

😭😭😭 I thought the idea of 'forums' was to share 'experience/knowledge/feelings' - I tried very hard not to come on here last week as 'some' users were just being 'nasty' for the sake of it !!!! That's what puts people off 😩😩😩 I don't want to read someone making nasty comments towards someone else no matter what it relates to 😒😒😒 I am sure if people live like 'we' do - then this is their only outlet - and whatever they write is to either be commented upon (in support or advice) or ignored - obviously I need another week off 😘😘😘❀️ @ mellow1 - you have my email if ever you want to speak without being moaned at xxx

RodeoJoe profile image
RodeoJoeβ€’ in reply to

I disagree, and I assume you're referring to me as one of the nasty posters. I've tried to be objective and give advice. If mellow1 is genuine then I really don't think these posts are going to get her the support she needs. This forum excels at giving practical advice to people suffering with liver disease, however a cry for help such as this appears to be, needs to be dealt by a professional as I said in a previous comment.

One thing I know about liver disease is that you have to be as strong as you can both physically and more importantly mentally. The consequences of not doing so are catastrophic, and these posts indicate that mellow is really not coping, probably still drinking and definitely needs help.

As catfishjumpin also comments it's all drama. Most of us have enough of that in our lives anyway, and don't live it out online. If it's attention she's asking for this is definitely the wrong forum.

Also it's unclear to most of us what is going on with mellow1s condition. I thought it started with Stage 3 liver disease a couple of weeks ago, but catfishjumpin say's above she mentioned having a couple of months left, which doesn't tally at all.

She's making unclear comments possibly referring to HE, but it doesn't sound like HE more of a breakdown.

People are concerned, that either these posts are fake or that mellow1 needs the sort of help this forum can't provide.

Jahida profile image
Jahidaβ€’ in reply toRodeoJoe

This is forum is becoming a place to seek attention. There is no need to create a thread everyday and no this isn't a place for this type of 'support'. It is a place like you say for practical advice and knowledge. Mellow1 creates threads after threads and some of the important threads get shoved to the bottom which to me is unfair.

When the first few threads were created especially the 'who needs medicine', I was angry. Some of the users were cheering on. Seriously? Some of us have no choice but to take medication and those that are depressed about their way of life, it will put them off.

Then there was a thread by Mellow1's husband going OK about how he fell in love with his wife and was even willing to have an affair etc....this really is not the place.

I agree with Rodeojoe and city man. People are dying on this forum and suffering. It isn't fair to write posts like this and create drama and drag users in.

I feel bad for users that are genuinely suffering and are coming on here for a glimmer of hope or a way to find more out about support.

No this is not a forum to create a thread after thread. It is a place which is 'clean' and 'friendly'. It does not mean to say post whatever you want.

Catfishjumpin profile image
Catfishjumpinβ€’ in reply toRodeoJoe

Thanks for that. I am vigilent about cross examining myself. These toxic liver feeds can cost us our life. I have been there near that place 3 times, one day I will be there and there will be no out. I know what is ahead, it makes today look like a cake party. I only listen to strong people, I do not want to be treated like a child and be told everything I feel is normal, its not, I have liver disease. The doctors are shocked how well I keep going thru every hurdle. I came here because I want support not to be proped up and made to feel acceptable. We are all in the same boat but for different reasons even after transplant. Transplant could not be that easy, one would have all kinds of issues to work out and hoops to jump thru. I know I live here. No drama is going to allow an escape.

Jahida profile image
Jahidaβ€’ in reply toCatfishjumpin

Catfishjumpin, I really feel your pain. It must be horrible living with encephalopathy. I assure you it isn't normal to feel like that. That isn't a normal thing to go through in life at all.

I'm glad you're strong because we need a positive mind to overcome this even if we can't get through it. However a positive mind creates positive energy and vibes. Of course you're allowed to vent and cry and acknowledge that what you are going through is real. But by no means it is normal.

Perhaps you can create a thread and tell us about your condition and journey or have I missed it?

Wishing the best for you and everyone who is going through this horrible trauma.

Just now while I was tidying I had some memories back to me after the transplant. I remember waking up after 4 days with a croaky voice and my relatives coming in to see me. I just remember murmuring 'I've become a baby again, look, I can't do anything by myself'. I just remember my aunts having tears in their eyes because I realise now how horrific I looked. That just made me cry quite a bit. Remembering being in a helpless condition. Nothing is easy. Suffering from liver disease is just as hard as going through a transplant but at least you stop experiencing so many horrible effects.

Catfishjumpin profile image
Catfishjumpinβ€’ in reply toJahida

I am sorry I confused you. I am not living with encepathology. I watch my diet very carefully so it does not happen, it may one day though, its part of the package. I still cycle on a race bike 25 mile treks and if my mind was not clear I could be killed on the highway. The sodium issue thus far forces me to carry 4 to 6 pounds of fluid. I no longer seem to be able to keep that off by swimming and cycling. I appreciate you sharing your story, you have been thru so very much.

β€’ in reply toCatfishjumpin

Wow!!!Your an inspiration to us all! I'm not trying to be facicious either. My son created a work out room for me and I try and do a little bit every other day. But in Canada you have to be on death door before they will put you on the top of the transplant list. Due to the horrific symptoms and hospitalizations its very difficult to keep the regimen and momentum going. You definitely need to keep yourself as strong as you can and I know complaining weakens the effect of all your heard workβ£πŸ‡¨πŸ‡¦

β€’ in reply toRodeoJoe

These posts are becoming a soap opera lol, I don't know who to believe is real and false! It reminds me of "Coronation Street" many years ago. I agree that this forum is based on giving out enough knowledge for people to work with, however, I don't like nasty comments either. I went through it here and I don't want to have the same experience again. So maybe I can make a suggestion that if you come across a post like that and it doesn't fit into your agenda, just don't comment on it all. Because if it is a real person and she is suffering, being cruel and nasty could send her over the deep end. Right? Ttfnβ£πŸ‡¨πŸ‡¦

H1ghtower profile image
H1ghtowerβ€’ in reply toRodeoJoe

I,d quit whilst you,re behind if i was you Rodeo.

Catfishjumpin profile image
Catfishjumpinβ€’ in reply to

There is a lot of positive help in my response. Feeling sorry for ourselves makes us weaker, not stronger plus we do get toxic feeds to our brains that cause emotional confusion. It all depends on what you want to hear or do not want to hear. Its all articulated clearly and its not an offensive comment.

I am sorry to have caused this. I was reaching out. I have looked back and cannot see where I have said '2 months to live' I wouldn't say that if it was no true. I really respect the people on here and have no wish to take advantage.

Rodeo Joe, city man I'm sorry you feel this way about me. Please, if you suggest my husband having his own post then please say it to us rather than talking about us.

I have had 3 lots of counselling incl CBT. I have taken an active role in sorting help and helping myself.

To be honest, you have made me anxious to even read my post replies. I would really appreciate it if you scroll past my posts as like us all, we need encouragement rather than bring being accused of writing 'the wrong thing'.

Yes, I do struggle a lot but I'm not the only one and I take great comfort in the fact that people on here reply knowing they are helping not judging.

Best wishes.

β€’ in reply to

Well said mellow1 ❀️❀️❀️ love and hugs to you and hubby - I am having a time out πŸ˜‚πŸ˜‚πŸ˜‚ I have enough 'arguing' over pointless crap in my life - I don't need anymore (the joys of looking after poorly loved ones 😘😘😘) I am quite chuffed really that Rob can't work an iPad as he would be on here swearing at everyone telling them to leave his wife alone πŸ˜‚πŸ˜‚πŸ˜‚ much love ❀️❀️❀️

RodeoJoe profile image
RodeoJoeβ€’ in reply to

I appreciate this sort of honesty, and it's really good to hear that you're getting counselling, and actively getting help.

All we could see was rather erratic posts like the one above. You are in the right forum for help, and I'm pretty certain that no one here will think any more of it. I think I can speak for the others when I say that we were concerned that your posts were rather self indulgent and not the kind of appropriate posts most of us on this forum are used to.

However I can definitely identify, as whilst ill myself for many years I believe I had mild confusion and brain fog that made me make some bad decisions, and contributed to a divorce.

The problem is that you posted that you had a bottle of wine and phoned the police, and it just sounded like attention seeking. If you'd just said that you're receiving professional counselling.

β€’ in reply toRodeoJoe

Thank you for your reply, rodeo Joe . I understand what you have said.

Take care.

RodeoJoe profile image
RodeoJoeβ€’ in reply to

Hey, no problem. I genuinely hope my posts haven't distressed you too much. I think now that we know what's going on we'll be better able to help you out.

Do you know if the counselling is anything to do with the liver disease?

β€’ in reply toRodeoJoe

Counselling is because of a very domestic violent relationship I ended up in after my divorce. You really scared me when you mentioned bail as the horrid, cruel man was put on bail. Luckily it was passed by the CPS very traumatic. However, I have my husband now and that's it. Will sort to get counselling re my condition. Thanks for your advise. I can look forward to reading all of your posts again! ☺

RodeoJoe profile image
RodeoJoeβ€’ in reply to

I didn't mention bail. I think that was someone else.

Domestic violence, drinking, liver disease. Enough to tip anyone over the edge. I hope you get the help you deserve. Always remember that this forum is a great place for advice don't be put off from a tough old boot like me, I've been through the wringer and got the badge.

It's difficult to help people "reaching out" on this medium. It's the kind of thing you need to sit down and talk about with a counsellor.

Good luck to you!

My apologies 😘😘😘 I was not aware that there was 'rules' and I really didn't know that you weren't allowed to express your feelings πŸ˜“πŸ˜“πŸ˜“ - I suppose we will no longer have 'poems or thoughts' about liver disease at all !!!

My view is - if mellow1 had no one else and came on here as a cry for help or whatever - then at least she is not sat at home alone and desperate ❀️

To vindicate her or her husband and call them 'fake' or accuse them of creating 'drama' is in itself very poor and not very nice - just my opinion !!! I have been a member for quite a long time and like to share 'our' story - I do this for myself and to help others - over this time I have read posts that have made me cry - laugh - appreciate and get really cross about - isn't that the nature of a group of people coming together to 'discuss' all aspects of liver disease ??? Sometimes I comment and sometimes I don't !!! Perhaps 'Holly Dawson' can step in and remind everyone of the 'rules' 😩😩😩

I believe that by being a 'nice' person you have to 'ignore' somethings - the above thread feels to me like some people are commenting a little bit 'too much' over someone's post 😑😑😑 it feels like mellow1 is being bullied and forced into only being able to post what a few people want them to post !!! I do not agree - if they want to post there 'story' or she is having a bad time - shouldn't they be allowed without having people be nasty about them ??? Where do you suggest they 'post' there 'dramas' ???? Or perhaps you would like them to just sit at home and bottle up ??? I apologise if this upsets people but I can't condone people calling them 'fake' and full of dramas !!!!! Think how they will feel reading your comments - or am I the only person that reads my posts before posting so not to offend or upset anyone 😘😘😘

I wouldn't be surprised if they no longer use this forum to share their experiences or feelings - If I was feeling low and upset due to Robs continuing illness this would now be the last place I would come for support - can anyone suggest another site that allows 'feelings and drama' (they both come with liver disease by the way - nothing is more dramatic than 6 false transplant calls or your loved one smashing up the house in a HE episode whilst you and your child are hiding upstairs waiting for police to arrive) - best wishes to all ❀️❀️❀️ hope you all continue to stay well enough to use forums 😘😘😘

cityman62 profile image
cityman62β€’ in reply to

Wot,no more poems?I'm off to sob to me counselor-sniff,blub :-)))))

β€’ in reply tocityman62

You can do whatever you like ❀️❀️❀️ I am not bothered xxx as long as it's not upsetting anyone you feel free - but if poems are 'feelings' then I don't think you are allowed to express those 😫😫😫 I really do give up πŸ˜“πŸ˜“πŸ˜“ I wish you all well I really do - but I can't be bothered anymore - it's far to stressful and upsetting and when I have my Rob upstairs looking like shite and feeling awful again - I can't find the strength to listen to people's bull !!!! If that's all they have to worry about is 'mellow1s' posts then best of luck to them - I have a husband who through no fault of his own got neglected by the system which resulted in cirrhosis then a transplant then a open wound for 15 months - infection after infection - cock up after cock up and now cirrhosis again and struggling on treatment - I shall go elsewhere for help and support as I don't want 'facts and figures' they don't mean a thing at the end of the day - thanks to those that have helped in bringing a smile - Google has facts and info without the 'nastiness' - as Bolly said 'let's keep it to LIVER health' sod the emotional aspects - the feelings that accompany liver disease - if your feeling down and want to reach out - obviously DO NOT DO IT HERE ❀️❀️❀️❀️

β€’ in reply to

Well said . will email you if that's OK πŸ‘­

X x

Bolly profile image
Bollyβ€’ in reply to

Robswife I don't know if you will read this as your profile now shows as hidden, but anyway...as you know this forum has new members joining all the time. Some pop in with a question, get an answer, resolve their question, and leave. Some stay longer, through a course of treatment perhaps or time spend improving their health. Some have no questions but a lot of knowledge and stay to share that knowledge.

You have both the questions, which hopefully this forum has helped with, but even more significant you have a wealth of knowledge. Of Hep C, of its symptoms, it's side effects, it's treatment, of transplant, of caring, of nursing, of the NHS...the list goes on. I do hope that, knowing that there will be more struggling newbies joining here, seeking support, that you will come back and give them that support and share your knowledge to help them make the best choices with their illness or treatment.

😘😘😘😘😘

Bolly x

β€’ in reply toBolly

Hi Bolly any chance of holding those thoughts and actually utilizing them appropriately? lol you ran me out of the forum for a while too!! But we all have a play in what we say or do and by the way my son helped me take off some of words in my blog that offended you. Hope it was enoughβ£πŸ‡¨πŸ‡¦πŸ˜Ž

Tatjana profile image
Tatjanaβ€’ in reply toBolly

Hi Bolly

I think Robswife is going through a really bad time and I know when this happens you can act differently to usual. I am a prime example.

I am going to do my best to try and get her to return to the forum.

I expect a lot of 'LIKES' please, thank you.

Bolly profile image
Bollyβ€’ in reply toTatjana

I can only click once for 'like'! She needs a break, so no rush, but it would be nice to think she knows how valued she is by forum members. :)

Catfishjumpin profile image
Catfishjumpin

Soap opra

ballie52 profile image
ballie52

I can understand to a certain extent people needing to get a lot of built up emotions out of their system..i have had a few rants in some of my posts..i do think though this forum is for dealing with people's issues of liver disease and talking to fellow sufferers

It was a wee bit confusing trying to figure out who was who..kind of understand some other comments that were made..I'm sure people didn't intend to be harsh..i suppose liver disease does cause a lot of confusion for some people!

Bolly profile image
Bolly

The guidelines for posting do stipulate that HealthUnlocked is for "health experiences". The British Liver Trust, whose forum this is, has a mission statement whose aim is to pioneer liver health. I suggest we try to keep to liver health, and reiterate that when Matt (I think that's the name Clare gave in an earlier thread for her husband) posts he creates a separate member profile to make it clearer for us as to who is posting.

briccolone profile image
briccoloneβ€’ in reply toBolly

yes-actually I think a moderator should have stepped in earlier on this particular thread.

cityman62 profile image
cityman62

Kinda reading back about my posts on this issue,I feel sort of bad....,but then again,I suppose this forum is about reaching out and looking for help-in a constructive way,not about inflicting a 'soap opera',on a daily basis.I can only go with my gut instinct and say,it feels 'false',if I'm wrong-I willingly prostrate myself-and apologise profusely...If I'm right,well,mellow 1/2/3 etc is possibly posting on the wrong forum-if you can read in between my lines.....I DO hope I'm wrong.Cheers to all...

City man, you are wrong. This has been on my mind all day. I have learned to vent, cry, talk etc etc etc somewhere else! πŸ˜‡

All I can do is apologise for alarming you. I do have issues and am gradually overcoming them one by one. My husband just wanted to be actively involved. He is going to join with his own post toworrow.

I hope you believe I am not a 'fake' nor an attention seeker, far, far from it.

Have a good weekend, wishing you well. Thanks for your post.

AyrshireK profile image
AyrshireK

Draw a line under it Mellow1, we are all here to share our stories and offer what support we can from our own experiences. It would be good if your loving hubby did join the forum in his own right and then answers can be tailored to your needs as the patient or his needs as the carer/loved one/supporter.

Forget all the nastiness, its over and done with, draw a line and let us all get back to doing what this forum has always done sharing experiences and providing great support to people at the worst of times.

Love to you both, hope you can get things a little more on track soon.

Katie xx

Hi love, I just discovered your post this morning. I hope you didn't drink the wine and I just wanted to let you know the same scenario occurred in my life about 4 years ago. Granted he was also physically and emotionally abuseing me as well as collaborating with my daughter false accusations to the police. But I did hang in there as I had my son with me. If you are still in that dilemma, I urge you to contact anybody who will comfort you. I live in Canada but most of my family stayed back in England. So I had to rely on my friends for emotional support!!! I know it's really hard for families of people like us who are suppose to be loving and caring individuals. But it's also a strain on their own psyche. One thing I've learned is to try not to show the emotional aspect of the disease to anyone. Cry if you need too, but do it in an area that they won't hear you. Please let me know how your doing as you pulled some really horrible memories of what I went through and I would really like to encourage you if I canβ£πŸ‡¨πŸ‡¦πŸ’ž

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