I have been following peoples posts and just generally getting the feel for the type of forum this is. I am encouraged that everybody is so supportive of both the sufferers and the partners, so I commend all of you.
Who would have thought that there would be a little "Liver" community out here on the interweb.
A little bit about myself, I am 56 years old and have primary liver cancer (HCC), along with cirrhosis. I was first diagnosed in Mar 14 and had a resection to remove the offending tumor. At this point I was told to be under no illusion that the cancer would return, and if I wanted to live just a tad longer I had to lose a lot of weight (about 8 stone) to meet the transplant criteria. The surgeon actually told me and I quote " the only place your liver should be is in a bucket".
Mar 15 I had lost the weight, and as predicted the cancer returned. I have been on the transplant list since last May, and the waiting is the only thing I struggle with. My care has been brilliant, but not knowing when or if the call is going to come can drive me mad at times.
When the cancer returned I took the decision that this wasn't something I wanted to keep a secret, so I started a blog about my journey through cancer and my time on the list (so far). If anyone is interested iot can be found at 1liver1life.wordpress.com and I update it regularly and have a readership from all over the world.
I am in the best shape of my life, my liver is functioning well, (what would a surgeon know), I think I am confounding my hepatologist, and although the transplant is inevitable, I don't think I am a priority whilst the cancer is managed.
That said, the phone will probably ring tonight, and off I will be.
Keep up the sterling work, and if anybody needs help and advice about alcohol, alcoholism, I may be in a position to help and guide. I haven't had a drink for over 13 years, and can quite comfortably say that AA, not only showed me that there could be life without alcohol, that in fact life without alcohol for this alcoholic is actually pretty cool.