I need to give you some background first which is difficult to summarize but here goes... My dad is 76 and had bowel cancer 4 years ago which he sailed through, tumour removed, excellent NHS care, no problem.
At the beginning of this year he started to feel unusually tired. He went on holiday in July feeling under the weather but enjoyed himself. He had attended a check up at the hospital and was told he had gallstones.
By August the pain in his abdomen is getting worse. Following another routine check up in September he was admitted to hospital for 2 days for further tests. They tell him to change his diet as all scans are 'foggy' due to too much gas in his stomach. By October he is loosing weight, spending more and more time in bed and finding it hard to eat and drink. This eventually leads to an emergency admission to hospital in late October. He has a urine infection and is treated with antibiotics. There is a change of consultant and after more tests they decide its liver cirrhosis. He has ascites and is treated for this.
Since then he has been at home in bed. He had one further admission to hospital with another urine infection. (November) Dad spends most of the time in bed as it is more comfortable. He lies there all day with no radio, TV or reading material. What does he think about?
He has had various GP appointments where they test his urine and take blood. He looks like a victim of famine and his muscles have wasted. He cannot breath and the slightest activity leaves him breathless.
He is allegedly under a consultant at the hospital who my mum has never met. I think dad met him twice on one of his visits to hospital. He finally has a consultation with this doctor this Friday 18th.
I visited mum and dad at the weekend and dad has the 'look of death'. I cannot describe it any other way.
Mum phoned for a doctor to visit this morning as we think the ascites is back and dad has yet another urine infection.
At no point have mum and dad received any advise about this disease or how to live with it. The appointment on Friday with the consultant will be the first opportunity to talk to anyone. It feels like the NHS have deserted us. Dad is also very depressed and the GP ignores mum when she tries to tell him this.
By the way, dad isn't a drinker. His brother died of liver cancer and was completely tee total although his diet wasn't good and he did smoke.
My mum and I don't know what to do for dad or how to help him. It looks like it all rests on this appointment on Friday. Does anyone have any advice please? Its all happened so fast, what do you think the prospects are? I need to be prepared.
Any help anyone can give us would be fabulous. Thank you