HCV logs πŸ€”πŸ€”: Hello - I am confused... - British Liver Trust

British Liver Trust

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Hello - I am confused πŸ˜…πŸ˜…

So I am hoping one of you lovelies can put me out of my misery 😘😘😘😘

Robs viral load - 6.7 (logs) - does that mean 6 million or what - I can't remember how to work it out 😧😧😧😧

Xxxxxxx

10 Replies
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AyrshireK profile image
AyrshireK

Found this chart Robswife - hepatitiscentral.com/hcv/he... And looking at it 6.7 would be a viral load in the 5-6+ million range.

I do hope they get him on some blooming treatment, there are other new posters of the forum with Geno Type 3 so there must be some sort of combination of therapy. Seems crazy to let that 'new' liver go the same route at the last. Grrr!!

Hope chart helps.

Lots of love to you both,

Katie xx

in reply to AyrshireK

Thank you 😘😘😘

Pretty much how I feel at the moment - just keep thinking what a waste ????? - 18 months after transplant and has only had a few days of feeling 'OK' - infection after infection - problem after bloody problem 😭😭😭 - we are extremely grateful but looking back a small part of us thinks was it really worth it ?? We are almost back to square 1 and considering our history with gps/hospitals it won't be long before they announce he has full blown cirrhosis and was somehow left out of the system 'again' - must try to be more positive πŸ˜‰πŸ˜‰πŸ˜‰

AyrshireK profile image
AyrshireK in reply to

It isn't blooming fair at all, stupid in the extreme to let him get so sick all over again. More than frustrating for you all.

Really got my fingers crossed that he does get on some treatment plan and you do get a light at the end of the tunnel. After all you have all been through with the whole transplant ordeal, HE etc. etc. You really, really deserve progress.

Love and best wishes.

Katie xxx

pear-shaped profile image
pear-shaped

Hello,

Seems to be a never ending road at times... We keep thinking something would be waiting round the corner and the the merry go round starts all over again...

I pray everyday for all suffers of this horrible disease and there partners - who are having to carry it all through as well...

Lots of love, hugs and prayers coming your way Hun...

Pear

ballie52 profile image
ballie52

My husband went through 3 transplants the 3rd was done after 2 days from the second because of a blockage in one of the arteries. .he went on to be attacked by Hep C soon after the transplant..it was decided that he needs to be treated he went on Interferon plus Ribba for 48wks and cured it..hard time doing that after a transplant but he's never looked back..that was 4yrs ago now and he's doing great.

Harvoni does work on genotype 3 but needs 24wks..I would ask for him to get a chance to clear it after all he's been through he deserves the chance of a cure Xx

ballie52 profile image
ballie52

Yes its a hard and long road for people. .even worse when both people sadly have the virus..just when my husband gets light at the end of a long dark tunnel I end up with cirrhosis myself and go through the same awful journey myself..at least I can get the chance of a cure..difficult time for all people affected by this terrible virus.

mousehold profile image
mousehold

I cleared the virus on harmoni after 4 weeks, had a liver transplant in week 10, carried on till week 12 and the hep C has not come back one year later. I am geno 3, had hep C for 40 years, tried old treatment (torture) 4 times - first was in the days of non pegylated interferon. By the time I got to be transplanted I had cancer but it was not seen before the transplant (thank god) they call it 'incidental cancer' when discivered on the explant. But at least by then harmoni had been invented. What a cruel disease this is and quite shamefully neglected by the government. I think it is unprecedented that NICE have approved a drug (Solvadir) and NHS England will not implement.

scottyboy40 profile image
scottyboy40

Morning Robswife....Hope you and Rob are coping ok.So i've got my viral load Hep C results and in August it was 1.73e6 Iu/ml and that is 1.7 million apparently.My log which is 6.24 is written immediatly below it but i don't know what that one means.

Hopefully this will give you an idea

Robswife.Xx

in reply to scottyboy40

Thanks Hun - think I have got it now - it's medium/high ??

How are you doing ???? Has treatment finished ?? How are you feeling ?? Hopefully like Liverpool and not AFCB 😒😒😘😘😘😘😘😘😘

scottyboy40 profile image
scottyboy40

Hi Robswife...

Sorry didn't mean to take so long to answer you...I'm doing really well at the moment...I've finished my treatment now and i'm still undetectable..Yay!..but need to go back in January for final screen...We'll see but things are defo going alot better for me...All my fluid has finally gone now and the only thing i've done differently in three years is get this treatment...so i think its had a big effect on my body..DX in 2002 and i havn't felt this good since...so things are looking up for me..i'm 40 yo and been addicted to drugs and drink since age 15 so i'm defo looking forward to the future and to be perfectly honest with you....I don't think i've ever felt this good..i finally won a few rounds in my battle but it's not over yet...I'm making strides to better my life now instead of trying to ruin it. I will always have Cirrhosis but i will keep trying to do right by my liver.

I wish I could pass on how i feel now to you and Rob...I feel your pain with Rob..Hoping things can really improve with his qaulity of life...that go's for you too.

You keep fighting his corner...i know it's painful but its what makes you special too..

Wishing you all the best for the future and good health!! XxX

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