My 17 year old son was diagnosed with GS 18 months ago, with several mild episodes and 2 episodes made worse by infections. 4 weeks ago he was getting over an episode, when he was given Erythromycin for a skin infection. Without realising, he was becoming very poorly and within a week he stopped taking them. But by then he was extremely unwell. Last Wed he had bloods done and yesterday the results showed very high levels of Bilirubin again, no anaemia (he gets breathless), no sign of infection via white cells. He gets tummy pain, lethargy, no appetite, not thirsty, yellow eyes, very shallow skin, weak, clammy. Since Wed he has hardly eaten or drunk anything, sleeping virtually constantly. I am having difficulty waking him up. He was given anti sickness meds, but today I am increasingly worried as to what to do, or who to contact for advice. The doctor did feel that the antibiotics were quite strong and have had a toxic effect on my son because of the GS, why was he given them in the first place. The doctor who prescribed them was unsure at the time herself. I just feel he needs some intervention to get him well. Can anyone please advise me as to what to do? I'm worried he will get to the stage where I will take him to hospital or call for help. Thanks in advance. A very worried mum.
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