Hello all, my name is John and I’m freshly diagnosed with cirrhosis of the liver, I’m still going through tests so I don’t know how damaged the liver is, but the prognosis has now been delayed due to two nodules having been found in my liver, I have had one CAT scan and one MRI scan but the nodules still can’t be identified so my Doctor says the results have to go in front of a “liver panel” so they can make a decision.
To give you an insight into how I was diagnosed, I had been in Africa where I picked up malaria I went to a hospital in Nairobi had a blood slide taken and had the malaria confirmed and was given medication.
[I’ve had Malaria at least ten times before]
Following morning I woke with diarrhea and found I was passing blood, shortly after I was physically sick and was Vomiting Blood, as there were no ambulances I took a Taxi to the local Hospital in Nairobi where I was admitted, I don’t remember a lot as I drugged up, but was told that the bleeding was caused from the reaction of my diabetes meds [type2] and the malaria medication, I spent two nights in hospital and was then discharged.
The following morning at my hotel again heavy bleeding, another taxi to the Hospital and I was admitted, this time a liver specialist took a look with a endoscope and confirmed bleeding Varocies, he didn’t have what was needed to fix the problem with him so said he would return in a few days, I was kept in hospital but have little memory of the experience, on the third day [that was the day of my return flight to the UK it was an evening flight.]The specialist turned up in the morning and explained he was going to glue [ not band] the varocies then got on with the procedure. Some hours later I was discharged and given the OK to fly, I returned to my Hotel, after packing I left for the Airport and arrived some 3 hours early to avoid long ques.
My flight was for 8 hours, then one Hour in France in transit then a flight from Paris to Manchester.As I waited in the departure lounge I knew I was still bleeding, but had to get out of Africa, I asked a staff member for a wheel chair explaining I couldn’t walk, the chair came along with the airport Doctor who asked me a few questions then gave me a certificate to fly and I was wheeled onto the aircraft, during the flight the bleeding continued however I managed to keep the blood in my stomach, when I landed in France I couldn’t leave the seat, medics were called and I was admitted to a hospital in France, I immediately had two endoscopes [ without meds] had four pints of blood transfused into me and basically spent 6 days in hospital having tests till the bleeding stopped, when discharged I took the train back to the UK.
Once back in the UK I gave all the notes from the Nairobi Hospital and French Hospital to my Doctor, I was immediately sent for an examination and subsequent Endoscope where two bands were fitted, since then I have had an Ultra sound which picked up the nodules, a Cat and Mri Scan and three more endoscopes which has resulted in 8 bands fitted in total.
Other than in France I have been medicated for all the endoscopes, I now have to wait for two weeks for a decision regarding the Nodules, and have another endoscope booked for the 23rd of Sept, my specialist has told me nothing, I really don’t know how good or bad things are, I only ever used alcohol at weekends although I did drink a lot over the weekend, since my first admission to hospital in Nairobi I haven’t touched alcohol and my liver function test [LFT] has now dropped so that it now shows my liver is operating within a normal livers function level, so I guess that’s good……………by the way I’m 55 and need to lose weight…. So there’s my story and introduction to this forum, please feel free to ask any questions. John