British Liver Trust
12,090 members5,979 posts

Just a quick (I tried!) hello & intro

Hi all I am 44 (lady though questionable) and from Norfolk with 3 lovely (mostly) kids spanning 3nearly 4 to my 16 yr old just doing his GCSEs.

In 1994 I became bed ridden overnight which ended up with a diagnosis of fibromyalgia. It took me years to conquer the symptoms enough.

in 2005 while just 4 weeks pregnant I contracted a virus which attacked my organs and I very nearly died.

This one event had 3 (most likely) outcomes, I lost a twin, my pregnancy was a nightmare and my daughter had many issues due to a blip in development and I nearly lost her many times. And I got autoimmune hepatitis.

So zoom forwards 9 years I am on 100mg Azathioprine and 10mg Pred. I started the gym last year and have fetching biceps and lost 2 stone (take that steroids) my daughter is amazing with no long term effects though she has had 4 surgeries and more to come.

My liver is ok but never been under control no cirrhosis at last check.

I do not dwell as I have been fighting ill health for 21 years, I have a lovely job and life is good. Just really painful and tiring sometimes.

I have a consultant visit next week so lets see whats next...

I tried brevity. ..

Al

3 Replies
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Good to meet you and love the name Star. Onwards and upwards eh, whatever life throws at us!

Reply

Welcome aboard Al, you'll find a lot of good folks on here and lots of good advice and support when you need it. There is also a specific AIH forum on the go who have a lot of great and knowledgeable folks and they've just started a closed group on Facebook which is getting a lot of hits.

AIH site is :- supportaih.websitetoolbox.com/

All the best to you, hope things continue to stay fairly positive for you. My hubby is just about to be assessed for a transplant following a diagnosis of cirrhosis caused by AIH so hopefully you manage to keep the cirrhosis at bay.

Katie

Reply

Hi there,

Despite all, your sense of humour shines through. It is like a breath of fresh air. All the very best to you.

Life can be really crappy without humour.

Bless you.

Reply

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