Thanks for having me

[Tiredmum75]

Hi everyone this is my first post I was diagnosed with breast cancer last month still in shock I just wanted to ask has anyone here suffered from autoimmune disorders and had breast cancer and gone through chemo therapy and how was it for them I’m scared to do chemo as I have two autoimmune disorders and worried chemo will give me more also thank you for letting me join this group

[RuthJ]

Hi sorry to hear you are on this path. Sorry I’m not in your position but I am sure someone will come along soon xx

[Tiredmum75 in reply to RuthJ]

Thanks for your reply

[Hidden]

Hi

Sorry to hear about your diagnosis, I was diagnosed with Breast Cancer almost 3’n’half years ago.

I have PMR (Polymyalgia Rheumatica) l was on Prednisilone & Methotrexate, they stopped the Methotrexate for Surgery & the subsequent Chemotherapy.

My 3 Consultants were all very optimistic that the Chemo would actually dampen down the PMR it did keep it under control for a good while, then after a year l had to go back to the Methotrexate.

I can chat more tomorrow if you have questions, feeling tired now, so settling down to sleep.

Best Wishes

MrsN 🌺

[Tiredmum75 in reply to Hidden]

Thanks for your reply and I hope you have a good sleep

[Hidden in reply to Tiredmum75]

Morning,

Sorry l had to dash off last night but my eyes were closing!

Where are you up to? What plan is set out for you & what AD’s do you suffer from?

When I was diagnosed l rang the Rheumatology Team to let them know & that l had to stop the Methotrexate pre surgery, my Consultant rang me than afternoon to say how sorry she was & for me to update the Team as l went along. So l would recommend to let your other Specialist’s know what’s going on.

It’s a difficult road but l recommend being proactive re your treatment especially as you have other conditions, are you on any Medication for the AD?

Please keep in touch & if you have specific questions just post them here.

Very Best Wishes

Angela 🌺

[Tiredmum75 in reply to Hidden]

I am diagnosed with coeliacs and Graves’ disease. I’m on levothyroxine for Graves

[Berylynn]

Its a very numbing, worrying point about a month after diagnosis, unexperienced factors ahead, nothing completely boxed in exact type or spread and waiting for a clear picture. You imagine the worst. I went through with diabetes type2. Second hit after 25 years clear! No rads they were years ago damage already there. Chemo only tailored to 85%, had opp first. Chemo comes with steroids which ruins sugar control. It made everything so hard but there was an extra diabetic nurse to support me, a bit like a district nurse. Eighteen months post chemo with stronger meds I am tipping insulin only. The niggling back pains arthritus based are now ten times worse, I still havent returned to my fitness level pre chemo. I never take meds for this only ice packs or water bottle. I already take too many meds. My arthritus was controlled pre treatments because I used Chiropractor treatments...I am still wary to return. I have new limits on distance walked, everything shares aching just in its turn. Day to day challenges increase but thankfully still here. Now its hubbys turn, a hip replacement. No driver for six weeks and over a mile to walk to shops.

We adapt, I returned to my botanical course, and focus on that. One more year to go. A year off midway. Mammo coming up though more anxious on that side not being scanned. Perhaps it will. All I can say is sugar levels have been and still bear more focus than cancer treatment. And chemo does make somethings worse, health moves to a new ticking over level and stabilises later. I was lazy and rested to recover, exercise outside limited as I kept mainly to the house, I still do except for a few swift shopping trips to town. Biological age must have increased but I am busy studying. Take each day as it comes, what we experience is tailormade to suit us, its never as worse than our head imagines it will be. We hopefully recover and reset our lives. With new itches and aches but with a clear head. (64 years).

,

[Tiredmum75]

Thankyou that’s great advice I have a surgeons appointment on the 23thrd so hopefully I will have some questions written down on what to ask

[julesab]

I had breast cancer 8 years ago and recently diagnosed with sarcoidosis....😱😱😱 I not sure of the link. Good luck with your journey..

[Tiredmum75 in reply to julesab]

Thank you good luck with your autoimmune journey

[julesab in reply to Tiredmum75]

Thank you 😀👍👍👍

[bones-bones]

Hi. I have Sjogren's Syndrome / mixed connective tissue disease (AI)

I have had a Mastectomy, Chemo and now Herceptin. I was taking Hydroxychloroquine and an Immunosuppresant ( Mycophenolate)

I had to stop taking Mycophenolate because of infection issues and my Rheumatologist then stopped the Hydroxychloroquine which I am taking again because of joint/ muscle pains.

On the whole I tottered along quite happily...probably helped by the Steroids we are given with the Chemo.

I suppose we have to grit our teeth and hope it works out well. Keep in touch with your Rheumatologist. Good Luck. (I am 75... If I can do it anyone can !)

[Tiredmum75 in reply to bones-bones]

Thank you for the reply and I wish you all the best

[Jennymary]

Sorry to read of your diagnosis, I've got no experience of your other issues so sending good luck wishes your way x

[Tiredmum75 in reply to Jennymary]

Thanks for the reply I hope you never have to experience autoimmune issues