Beginning a journey with Osteoporosis

[Freshair24]

I am 2 months in ,giving myself monthly injections of Romosozumab. Is anyone else on this drug? The injection site is always painful afterwards,after about an hour and bulges, and goes red and itchy over 2 days then it's fine.

That's the only side effect thankfully so far.

I took a long time deliberating whether I would have this drug ,talked to GP and other professionals,. Internet is not helpful quite a few sites very negative. I do favour alternative medicine but I have to trust the medical advice on this one .

Just wondering if anyone else has started this drug ?

[Camsbaba]

hi I am starting the same drug in a few days, it has taken some time thinking it over but results are verified I believe, good luck with your journey

[Freshair24 in reply to Camsbaba]

Hi Camsbaba ,thanks for your reply it will be interesting how you get on,it is a big thing to think about. Keep in touch

[Freshair24 in reply to Camsbaba]

Thanks for that ,and hope it goes well for you too.

[28Harvey28]

I have just done my 3rd month of this drug this week. Like you I was quite anxious about this before but really felt I had no alternative if wanted to see any improvement in bone density. I have had bruised legs, sore to touch and raised site patch but this only lasted for a few days and not really that painful. The bruises were there for longer. Have had worse with flu vaccine at times. I was advised before I started by the nurse that the injection sites could become painful and using a cold compress might help. So far I have not needed this. This month I took the drug out of the fridge 3 hours before I needed it so longer than advised to do. I also did the injections a little lower and more to the side of thigh. Pinched and kept pen flat to skin. It might just be a coincidence but I have no bruises and the swelling has gone in 2 days. Wishing you all the best on your journey.

[Freshair24 in reply to 28Harvey28]

Hi that's great advice , I did get bruising on my leg,so will try some of your advice ,really helpful to hear how it's going for you too. Thankyou thanks for taking the time to share it all .

[bookbear68]

hi Freshair24

I am 8 months in with Romosozumab. Like you I have quite a big site reaction for a couple of days and the injections themselves are pretty uncomfortable. However this drug has got me back on my feet after hip and spine fractures so I am seeing it through the 12 months of treatment. I do ice pack on the injection site after the first few hours after the injection and that does help. I have more side effects from the PMR and GCA drugs to be honest but the fractures have been life changing so I would recommend you go with this drug to protect yourself. The osteoporosis society have very good advice on drug treatments and a great helpline. Good luck!

[Freshair24 in reply to bookbear68]

Thanks for all your comments really encouraging, and absolutely I want to do the 12mths, really important. Well done you !

[Dancingdina]

Yes I’ve had injections for 9 months now. Initially lots of bruising and soreness at the sites, headaches and tired after, but these have all lessened. I do get my daughter to help inject as it is often a painful injection.

Keep up your calcium supplements and vit D, I also take magnesium and other minerals to support the bones

[Freshair24 in reply to Dancingdina]

Thanks for all the advice ,really really helpful ,what a great support network this is

[Tofueater]

Hi Freshair. I took Evenity for a year by giving myself two injections every month. So sorry that you appear to have some localised reaction to the medication. Fortunate I was fine and finished my course of injections a few months ago. I have since had an infusion of Zolendronic acid. None of us know how our bodies react to these drugs and I guess we just have to hope for the best as osteoporosis is so awful. Good luck with future injections and I hope you manage to complete the course.

[Freshair24 in reply to Tofueater]

You are so right we all react differently, and I am fine ,it was so lovely that you and others kindly gave their experience. Suddenly you are not alone with a particular problem. Very special forum Well done you ,you can now look back and be glad you did it .

[EllieJ1970]

Hi Freshair - I am 7 months into this and always get pain over the injection sites for a couple of days afterwards. It's a common side effect. I find that sometimes it's worse than others and I guess it just depends where exactly you inject it. I don't think you should worry too much about it, as long as you can bear it while it lasts! I hope this is a bit reassuring. I was really worried about doing the injections, and still find it stressful, but I always have a friend with me, which I find helps enormously.

[Freshair24 in reply to EllieJ1970]

Thanks for that, Seems most people do have similar reactions, so encouraging hear how it was for you too ,thanks for replying it's really helped .

[lgd333]

I've just been offered teriparatide for 2 years but nervous about the injecting of it myself. I'm still looking into it and haven't yet given my approval.

[Lilbil in reply to lgd333]

Hi I’ve just finished my 2 years of Tersparatide and the injections are very small and painless. My bones improved by17.5%, I didn’t suffer any side effects and would have been happy to continue them but only allowed 2 years. Don’t be worried about the injections you will be shown how to do them. Hope this information is useful good luck

[lgd333 in reply to Lilbil]

Thank you for the advice and information. I've got multiple spinal fractures and have been on Risedronate Sodium for the last 5 years. I'm also epileptic so obviously nervous of the side effects.

[Motown_1960 in reply to lgd333]

Hi I’ve been on Teriparatide for about 2 months . I was very nervous at the thought of injecting myself, but once you get used to it , it only takes a few minutes . The nurse will go over the steps with you and the instructions are easy to follow. I inject myself in the evening . Good luck with your journey

[lgd333]

Thank you. Still nervous but it's worth a try.

[Crumb1y]

I am about to take my third set of injections...Lets keep in touch since were both at the same point. Im relatively fit , I go to the gym 4/5 times a week, and I have physical job renovating houses so Im finding the generic advice on exercise frankly horrifying! I have a compression fracture at T8 which Ive no idea when it occurred since only had an X-ray in order to start the infusion...but instead was swopped onto Romosozumab because of this ....

[Freshair24 in reply to Crumb1y]

Hi yes let's follow eachother ,similar experience. My spinal compression fracture was T10,its amazing that it can happen with no symptoms.like you only discovered by a scan/xray.I too have a physical job as self employed gardener It's very difficult to know what not to do as how I did the compression fracture is unknown .I will just keep doing what I enjoy,watch the loads I lift ,reduce them and lift correctly without twisting. And ask for help if too heavy. I asked my GP ,how do I know when a load is too heavy ?? He said if you can't move it !!! Really helpful! I use a trolly a lot.

Hope your next injection goes OK.

[lgd333]

Just received a form asking for my approval to supply the teriparatide which I have to sign and return. Seeing my doctor on Monday so will chat further. Take care.

[Freshair24 in reply to lgd333]

Hi,good to chat to a Doctor ,I think I had to sign forms too. All the best .