Vascular necrosis of both hip's

I see the surgeon today after 4 cancellations I've got to have a MRI scan to see if they're going to drill into feromral head's to relieve pressure or there going to replace both hip's I'm sort of relieved but either operation I'm not looking to it.

[CDPO16]

Gosh, that sounds horrendous. I wish you well for whichever treatment you receive.

[Hidden in reply to CDPO16]

Thank you so much.

[springcross]

Whichever they decide to do, I hope all goes well and that you have a good recovery.

[pjwjgw]

Whatever treatment is decided on, hope it goes well for you

[Hidden in reply to pjwjgw]

Thank you

[Nightingales]

So sorry to hear that. I had the same horrible surprise diagnosis. At the moment in one hip but the surgeon said it was likely that the other hip and both knees will need replacing. I had a total hip replacement two weeks ago and I am doing well . I am on 15 mg Pred because of another flare at Christmas. My flares are not just pain, they are accompanied by ESR and CRP going from normal to very high in a short space of time. Consequently I have been on high doses of Pred for 8 years now plus injections into bursa, back and sacroiliac joint. Avascular necrosis is quite rare. Don’t you feel honoured 🥴. So now I have to recover from the surgery and start the long but necessary taper . I have to get off pred. I have tried two DMRDS without success and when I am healed I am going to start Leflunomide every other day. It’s very worrying thinking your bones are dying. Best wishes for a good recovery. Keep us posted.

[Hidden in reply to Nightingales]

Definitely don't feel honoured🤣 hope you get back on your feet again soon