Limo12: I was diagnosed with... - Bone Health and O...

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Limo12

Majorboxe profile image
11 Replies

I was diagnosed with osteoporosis a year ago with a dexa scan of 2.6. I was prescribed AA but did not feel it was suitable. Following an appointment with a consultant today , it has been suggested that I have either injections of infusions. I believe that both of these may cause side effects. I have had two compressed discs which was how my diagnosis was established. I would be interested to her your views from personal experience as to which if either root I should take.

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Majorboxe
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11 Replies
Majorboxe profile image
Majorboxe

Thanks for your comprehensive reply. I will look into and follow your suggestions alongside those already in place.

t1gernidster profile image
t1gernidster

Have you been tested for hyperparathyroidism? A simple blood test will indicate if there is calcium in your bloods which would indicate that condition. It is a fairly common cause of osteoporosis that is often overlooked.

Majorboxe profile image
Majorboxe in reply tot1gernidster

I had blood tests to check liver function and Vit D levels yesterday. I will ask about this. Thanks

Mimma profile image
Mimma

Hello,I too have osteoporosis and was initially on AA which did not suit me so was put on yearly infusions of Zoledronic acid. My reaction to the first one was vomiting and feeling unwell for 24 hours. The second dose had less of an impact and I just felt a bit under the weather for a day or two. The third one is due next month.

Hope this helps.

panda22 profile image
panda22

I have a 6 monthly injection of Prolia. There has been some bad reports about this but I have found it great

Met00 profile image
Met00

I'm guessing you mean that one of your t-scores was -2.6, which is only just into the osteoporosis range. You should have been given two scores, one for your spine and one for your hip. Do you know them both? If not, assuming you're in the UK, you have a right to a copy of your DEXA scan report, which you can request from your GP's receptionist. Other factors for consideration are your age and your fracture risk (a percentage score - eg 10% risk of fracture in the next 10 years) which should also be on your scan report. I was first diagnosed at age 58, with t-scores of -2.3 (hip) and -3.2 (spine) and, because I haven't had a fragility fracture (one that occurs with minimum impact, for example falling from standing height), was told it wasn't necessary to take medication. My GP persuaded me to take AA however, which didn't suit me, so I then switched to Risedronate, which I took for a year but then stopped due to side effects. I haven't taken anything since (now nearly 7 years since diagnosis), but focus instead on exercise, healthy diet and supplements.

Majorboxe profile image
Majorboxe in reply toMet00

Yes, my hip score is the same, 2.6. It says that my QRISK2 cardiovascular 10 year score is 11.3, is that my risk of fracture score? My GP has failed to inform me of these details. Thanks for your help, I am thinking of following your route.

Met00 profile image
Met00 in reply toMajorboxe

No, apparently that's your risk of having a heart attack or stroke in the next 10 years (silverdaleandryecroftpracti.... The DEXA report should have given a percentage risk of hip fracture and percentage risk of major osteoporotic fracture.

JulDeb7374 profile image
JulDeb7374 in reply toMet00

What do you think of my report I finally got from my GP.It states Lumbar spine. Not scanned due to query degenerative changes.

Rt Femoral Neck T score -2.3 Z score -0.2

Rt Total Hip T score-1.2 Z score 0.8

Lt Femoral Neck T score -2.6 Z score -0.4

Lt Total Hip T score -1.3 Z score 0.6

Doctor recommended bisphosphonate but to scared to take it because of side effects. I feel fit and well for 77 years old, calcium in all forms gives me terrible bloating and painful tummy. Totally confused as what to do.

Met00 profile image
Met00 in reply toJulDeb7374

According to those scores, you don't have osteoporosis! Your left femoral neck score is just into the osteoporosis range, but your right femoral neck and total hip score are both osteopenia. Your z-scores all show that your bone density is normal for your age. The only reason I can see for recommending bisphosphonates would be if you have other risk factors for fracture, in particular if you've already had a fragility fracture (one where most people wouldn't fracture in the same circumstances, for example falling from standing height). If you have no risk factors, I would ask your GP to explain why he believes medication is necessary. Also, NICE recommends that calcium be obtained from diet. Bisphosphonates aren't calcium, but your GP may want to prescribe a combined calcium/Vitamin D supplement. If so, point him in the direction of NICE guidelines for osteoporosis and ask for Vitamin D only.

JulDeb7374 profile image
JulDeb7374 in reply toMet00

Thank you so much for your reply, I have never broke a bone possibly lucky. I have always taken vit D and a prebiotic. I had my gallbladder removed three years ago and my stomach pain went away, until Doctor put me on calcium so had to stop. I now take vitamin K2. Thank you once again appreciated your help

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