I’m asking as one member repeatedly breaches HU guidelines by posting direct links to sales sites, advertises products, & is rude towards other members on the forum.
I have reported the posts to HU, as I assume other members have done, but no action has yet been taken.
Written by
BadHare
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I'm surprised some inappropriate posts haven't been edited or deleted. People are barred from other forums for lesser behaviour & bad manners towards members.
Hello BadHare, Recently got in touch with Health Unlocked about whether there are any admins, and they said that their business model is that other organisations pay them to provide health forums, and that it is the responsibility of the other organisations to provide admins. I’m not sure who pays for this forum - is it the ROS? But I’ve never seen any evidence of an admin, perhaps Kaarina has? Unless it is the occasional person who advises calling the ROS helpline. It is less of an issue on this forum as osteoporosis can be devastating for some but it is not immediately life threatening and self help advice can be very useful, whereas on another forum non-professionals were giving each other self-help advice about dealing with symptoms which could have indicated something much more serious and should have been taken to a medical professional sooner rather than later. I did try to tactfully suggest that a couple of times but was concerned not to make people even more anxious. I actually left the forum in the end as it was worrying me too much. HU were very helpful and said they are looking into it, although I still have no idea whether there are any admins. I do get that maybe talking about an anxiety on a forum is the first step to having the courage to speak to a professional, but would like to see more quiet intervention in certain cases, maybe even behind the scenes. All very best Annelii
Ok I just noticed that there is a handy list of administrators on the right hand side of the page and that one of them is a ROS nurse. As said though, it is less of an issue on this forum than on the other I joined. I haven’t seen any of the marketing posts BadHare is referring to, but if that’s what they are, rather than simply advice, then I believe they would fall outside the guidelines.
And finally, just checked the guidelines and they include both respectful behaviour and no spamming. Mentioning or providing links to named products might constitute the latter, but it is unclear what they actually mean by spamming, and whether it is just obvious advertisement posts. I don’t think it actually states that products cannot be mentioned by name as far as I can see. Accounts can be suspended if they breach the guidelines.
I'm on several other forums, some very quiet, & others that have lots of daily posts with excellent admins that are extremely knowledgeable as well as on the look out for inappropriate posts & replies. This is an important & informative website, & it's a pity when members let the side down by behaving innappropriately.
Sometimes people ask questions that they really should see a medical professional for, though often people want reassurance they haven't something serious. Knowledgeable admins can help with this, as can people with similar health conditions or experience, which is why HU can be so supportive.
We should always be as helpful to others as possible, & not tolerate bad manners.
With my work I constantly look at other websites, and I find HU one of best that I follow. I am not too concerned about products being mentioned, or operations in private hospitals as I feel many of us would like to know more from independent sources, especially if we are considering spending £2,000+ on inflatable sleeves. I have probably been guilty mentioning an article I have written - so apologies!
veriterc there's quite a difference between mentioning products, as happens on most forums, & adding links to them. We also benefit from reading research articles so no apologies needed there, though I'm afraid I missed yours so will look it up when I have more reading time. It is against HU guidelines to promote or advertise products, & it's general bad manners to be rude to people.
As a journalist, I realised during treatment that they could be 'economical with the truth' so started to blog about what I could find - and hopefully help others navigate through the treatment minefield. When they tell you cancer is a 'fight' no mention is made that the fight can be sorting out treatment! Anyway, I like quirky things, and have just posted tongue-in-cheek comment about 'good' things currently. aftercancers.com/coronavirus
It's a fight to get help for many health conditions, & certainly one a lot of us need help with. Look up the UK's T3 debacle... Thanks for the link! Quirky is definitely good. I'll have a read once I've done my chores for the evening.
Kaarina Thank you for a lovely comment. I do like this Community, because I learn so much from it, and often something written on the Forum sparks an idea - today I've just posted a quirky article on aftercancers.com that was sparked by one Facebook idea around the Coronavirus pandemic!
Thank you for your vigilance and for raising your concerns.
We have reviewed the user and their posts, and agree that this behaviour breaches our community rules. This user is now restricted and unable to create posts, respond to posts, or send private messages to members of this community.
With best wishes,
the ROS team
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