Does the bone health forum have any a... - Bone Health and O...

Bone Health and Osteoporosis UK

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Does the bone health forum have any administrators that monitor posts?

BadHare profile image
22 Replies

I’m asking as one member repeatedly breaches HU guidelines by posting direct links to sales sites, advertises products, & is rude towards other members on the forum.

I have reported the posts to HU, as I assume other members have done, but no action has yet been taken.

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BadHare profile image
BadHare
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22 Replies
Kaarina profile image
Kaarina

There are admins in this community that I presume monitor posts, BadHare. ;)

BadHare profile image
BadHare in reply to Kaarina

Thanks Kaarina !

I'm surprised some inappropriate posts haven't been edited or deleted. People are barred from other forums for lesser behaviour & bad manners towards members.

pigeonCl-HU profile image
pigeonCl-HU in reply to BadHare

BadHare, I totally agree with you!

Funny who was the first one to slag you, without you even mentioning any names? It is quite telling.

I do not think this forum is properly monitored. Other forums would have barred that member ages ago.

Now the barrage against me will begin : watch this space.....

pigeon.

annelii profile image
annelii

Hello BadHare, Recently got in touch with Health Unlocked about whether there are any admins, and they said that their business model is that other organisations pay them to provide health forums, and that it is the responsibility of the other organisations to provide admins. I’m not sure who pays for this forum - is it the ROS? But I’ve never seen any evidence of an admin, perhaps Kaarina has? Unless it is the occasional person who advises calling the ROS helpline. It is less of an issue on this forum as osteoporosis can be devastating for some but it is not immediately life threatening and self help advice can be very useful, whereas on another forum non-professionals were giving each other self-help advice about dealing with symptoms which could have indicated something much more serious and should have been taken to a medical professional sooner rather than later. I did try to tactfully suggest that a couple of times but was concerned not to make people even more anxious. I actually left the forum in the end as it was worrying me too much. HU were very helpful and said they are looking into it, although I still have no idea whether there are any admins. I do get that maybe talking about an anxiety on a forum is the first step to having the courage to speak to a professional, but would like to see more quiet intervention in certain cases, maybe even behind the scenes. All very best Annelii

annelii profile image
annelii in reply to annelii

Ok I just noticed that there is a handy list of administrators on the right hand side of the page and that one of them is a ROS nurse. As said though, it is less of an issue on this forum than on the other I joined. I haven’t seen any of the marketing posts BadHare is referring to, but if that’s what they are, rather than simply advice, then I believe they would fall outside the guidelines.

annelii profile image
annelii in reply to annelii

And finally, just checked the guidelines and they include both respectful behaviour and no spamming. Mentioning or providing links to named products might constitute the latter, but it is unclear what they actually mean by spamming, and whether it is just obvious advertisement posts. I don’t think it actually states that products cannot be mentioned by name as far as I can see. Accounts can be suspended if they breach the guidelines.

milkwoman profile image
milkwoman in reply to annelii

Have you tried PM to one of the admins listed?

annelii profile image
annelii in reply to milkwoman

Hello, no, I went straight to the HU contact address re the other forum I mentioned as I thought it was quite a serious issue.

BadHare profile image
BadHare in reply to annelii

Please let us know what they come back with. :)

annelii profile image
annelii in reply to BadHare

Will do, if they get back 👍

BadHare profile image
BadHare in reply to annelii

Hi annelii ,

I'm on several other forums, some very quiet, & others that have lots of daily posts with excellent admins that are extremely knowledgeable as well as on the look out for inappropriate posts & replies. This is an important & informative website, & it's a pity when members let the side down by behaving innappropriately.

Sometimes people ask questions that they really should see a medical professional for, though often people want reassurance they haven't something serious. Knowledgeable admins can help with this, as can people with similar health conditions or experience, which is why HU can be so supportive.

We should always be as helpful to others as possible, & not tolerate bad manners.

Kaarina profile image
Kaarina

Here is the link for the guidelines in this community: healthunlocked.com/boneheal...

I have noticed that one or two postings have been deleted in the past.

Some rules have been broken lately in this community and to date it would appear they are not being addressed by the admins.

veriterc profile image
veriterc

With my work I constantly look at other websites, and I find HU one of best that I follow. I am not too concerned about products being mentioned, or operations in private hospitals as I feel many of us would like to know more from independent sources, especially if we are considering spending £2,000+ on inflatable sleeves. I have probably been guilty mentioning an article I have written - so apologies!

Kaarina profile image
Kaarina in reply to veriterc

There is no need to apologise you really help others in this community.

It is more about, harassing / intimidating, embarrassing or annoying other community members which has unfortunately been occurring of late.

BadHare profile image
BadHare in reply to veriterc

veriterc there's quite a difference between mentioning products, as happens on most forums, & adding links to them. We also benefit from reading research articles so no apologies needed there, though I'm afraid I missed yours so will look it up when I have more reading time. It is against HU guidelines to promote or advertise products, & it's general bad manners to be rude to people.

veriterc profile image
veriterc in reply to BadHare

As a journalist, I realised during treatment that they could be 'economical with the truth' so started to blog about what I could find - and hopefully help others navigate through the treatment minefield. When they tell you cancer is a 'fight' no mention is made that the fight can be sorting out treatment! Anyway, I like quirky things, and have just posted tongue-in-cheek comment about 'good' things currently. aftercancers.com/coronavirus

BadHare profile image
BadHare in reply to veriterc

It's a fight to get help for many health conditions, & certainly one a lot of us need help with. Look up the UK's T3 debacle... Thanks for the link! Quirky is definitely good. I'll have a read once I've done my chores for the evening.

veriterc profile image
veriterc in reply to BadHare

I you come across anything I can include in the Humour category, I am always on the look-out!

veriterc profile image
veriterc

Kaarina Thank you for a lovely comment. I do like this Community, because I learn so much from it, and often something written on the Forum sparks an idea - today I've just posted a quirky article on aftercancers.com that was sparked by one Facebook idea around the Coronavirus pandemic!

AnnieW55 profile image
AnnieW55

Have you not seen the first replies to BadHare on this thread?

Or some of the replies from the same person on the thread below this re Coronavirus?

in reply to AnnieW55

No.

ROSModerator profile image
ROSModeratorPartner

Hi everyone

Thank you for your vigilance and for raising your concerns.

We have reviewed the user and their posts, and agree that this behaviour breaches our community rules. This user is now restricted and unable to create posts, respond to posts, or send private messages to members of this community.

With best wishes,

the ROS team

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