Stopping Prolia : I took my first... - Bone Health and O...

Bone Health and Osteoporosis UK

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Stopping Prolia

Donnad1951•

6 years ago•1 Reply

I took my first injection June of 2018 in July I started having Severe bone pain constant Nausea, night sweats leg cramps and tremors, so sick lost 10 lbs in 10 days it is now Sept 20, been to ER once for I V ''s, twice to my Dr. for pain shots and steroids, today to cancer center for blood work and 12 more days on steroids, I was told I would have to have phosphorus infusions to stop my bones from getting brittle ,you can't just stop , I am so upset and sorry I ever tool this medicine, I was also told My T score was not that bad to begin with it was 2.6 ! It has been a nightmare.

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Donnad1951

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lolly646 years ago

Hi Donnad that sounds horrendous, I have heard some nasty side effects with prolia, I think the tablets are probably the best of a bad job I'm on alendronic acid did have a few side effects first few weeks with bone pain but mostly in fingers where I already have arthritis, but that did subside after roughly three weeks, I understand the injections can be worse and it's said that when you stop them the effects don't stay in your system like the tablets I'm wondering did you try tablets first, or I'm guessing your from the US maybe prolia is the norm, in UK that try us with the most cost effective which is AA but you can't put up with that level of pain you must speak to your GP I wish you luck and hope you get well soon