Hi all, my cancer recurred in January 2022. It’s in the right side of my liver this time. Three Tumor Boards later I have spent 10 weeks trying to come to an agreed upon plan and don’t yet have one. My cancer is aggressive so time is not on my side.
My local oncologist recommend Y90 and immunotherapy. The cancer research hospital referred me to the transplant team at another hospital. The transplant team recommends another resection.
These are the issues. Some feel with another resection there won’t be enough liver left if the cancer comes back a third time. It’s aggressive. As of now I don’t meet the criteria for transplant because the rest of me is too healthy. I have no other liver disease or other disease in general.
Some feel a Y90 won’t be able to get it all.
Immunotherapy is not suggested because if you have systemic treatment it hurts your chance to get a new liver.
As of this week, I have had all my tests redone to see what the tumors look like today. This is good. I have an appointment with the liver surgeon (transplant team) on Wednesday to review everything.
I have worked extremely hard to unite all my Doctors to come up with an agreed upon care plan. It’s been a full time job. The surgeon wants to cut and the oncologists wants to treat. The researchers want a new liver.
I Thank god I have the strength and ability to fight for myself at this time. The communication systems are being Improved tech wise but for the patient they are still broken and top it all off with Covid, need I say more.