FDA Study Provides $50 for HCC Patien... - Blue Faery Liver ...

Blue Faery Liver Cancer

667 members364 posts

FDA Study Provides $50 for HCC Patient Interviews

AndreaWilson_Founder profile image
AndreaWilson_FounderPartnerEditorCaregiver
2 Replies

With funding from the FDA, the Friends of Cancer Research are collaborating with the National Organization for Rare Disorders (NORD) and Northwestern University on a research grant to develop a set of questionnaires to understand how disease symptoms and treatment side-effects impact physical function.

The research team is seeking to recruit three individuals living with hepatocellular carcinoma to take part in research interviews. Each interview will be conducted over the telephone and will last 60 minutes. Research participants will receive $50 compensation.

Contact Allison Seebald of the National Organization for Rare Disorders for details at aseebald@rarediseases.org

Please let her know Blue Faery referred you. Thank you!

~Andrea

Written by
AndreaWilson_Founder profile image
AndreaWilson_Founder
Partner
To view profiles and participate in discussions please or .

The ability to reply to this post has been turned off.

2 Replies
Curly_Girl profile image
Curly_GirlCaregiver

Thanks, Andrea! Dave is getting screened for an interview next week, and he let them know you referred him. Have a great weekend!

Wendy

AndreaWilson_Founder profile image
AndreaWilson_FounderPartnerEditorCaregiver in reply toCurly_Girl

You're so welcome! Thank you for contributing to the Patient Resource Liver Cancer Guide! ☺️

Not what you're looking for?

You may also like...

HCC PATIENT LOOKING FOR NEXT STEP

I want to give you a brief history of my treatment. I have had a combined treatment of Y90...
WayCas profile image
Patient

Incorporating the patient voice into HCC care

Hello everyone, After moderating a discussion at SALCS this past weekend where @[1592441]spoke...
AndreaWilson_Founder profile image
Partner

Dad with HCC started Lenvima 3 weeks ago, looking for encouragement

73 years old, diagnosed with stage 4 HCC in January. Had to wait until three weeks ago to start the...
LAA21 profile image
Caregiver

Updated information causing confusion

Hi all, my cancer recurred in January 2022. It’s in the right side of my liver this time. Three...
Iggy08713287 profile image
Patient

Insomnia Strikes Again 😂

Hi y'all! Hoping everyone is doing well. Jimmy had his monthly lab work on Monday that is required...
DancingEyes63 profile image
Moderator

Moderation team

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.