With funding from the FDA, the Friends of Cancer Research are collaborating with the National Organization for Rare Disorders (NORD) and Northwestern University on a research grant to develop a set of questionnaires to understand how disease symptoms and treatment side-effects impact physical function.
The research team is seeking to recruit three individuals living with hepatocellular carcinoma to take part in research interviews. Each interview will be conducted over the telephone and will last 60 minutes. Research participants will receive $50 compensation.
Contact Allison Seebald of the National Organization for Rare Disorders for details at aseebald@rarediseases.org
Please let her know Blue Faery referred you. Thank you!
~Andrea