HI I was diagnosed with severe emphysema in November last year, at first I was a bit confused as I went to see the consultant with a sinus problem and suspected sarcoidosis following a chest x ray, the consultant did a cat scan and spirometry and blood tests and told me I had severe emphysema,
but just emphysema no other problems fev 98% gas transfer 41% , he told me if I didn't stop smoking I would not last long.I was very lucky in that I wasn't a heavy smoker and managed to stop quite easily, I received some good advice from the people on this site and from the BLF nurse, My main problem was fatigue I am the sole carer for my disabled wife and I work part time as a production technician in an aerospace factory( who gave me a written warning for being ill),after receiving advice from this site and reading the blogs posted here I went back to my doctor and they found that I had sleep apnea, I now have a C PAP machine and though still tired it's not as bad as it was( though I feel a bit like" Darth Vader" at night).
Again from info I picked up from this site I went to PR where I met some people who were doing what they can to manage there conditions. At first I felt a bit out of place at 53 I was younger than the others and even though my diagnosis was severe and most of them were mild/moderate they all seemed worse than me with bronchitis e.t.c. and they had all been in hospital at some point but when tested with an oxygen monitor during exercise my levels dropped to 83-85 not disastrous but worse than everyone else's, the team gave me lots of info and I feel more prepared now that I have the facts. I had my spirometry done last week and it is still more or less the same FEV 98% gas transfer dropped to 39% again not good but not too much to worry about I think, the consultant even showed my my cat scan with big black holes in what used to be my lungs.
I now know much more about COPD but info on pure emphysema is hard to find. It's been an eventful year I know that COPD is different for everybody but I would still like to know if anyone else has a similar condition.
May I wish everyone a merry Christmas and a happy new year. HAVE FUN Stay Well and BREATH EASY !