I have been diagnosed with this life threatening condition and wanted to learn from others who also have it, particularly how to make life easier.
It's quite a rare lung disease that affects mainly people in their late 60's & 70's. Its even rarer to see in someone of my age ... 44.
In short our lungs become scared over a short time resulting in a change to the Interstitial tissue and therefore a loss of alveoli. There's no cure and sadly the prognosis is poor .. just a few years after diagnosis. I'm in my first year.
I'd be grateful to anyone who could offer any advice or knowledge that would ease this journey for me. Thank you for reading this.