Everyone deserves the same standard o... - British Lung Foun...

British Lung Foundation

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Everyone deserves the same standard of pulmonary rehabilitation

BethanyBateman profile image
BethanyBatemanBritish Lung Foundation

Hi guys,

In the nearly 9 years (!) that I've been at the British Lung Foundation, the vast majority of people who have been to pulmonary rehabilitation have raved about it.

But... not everyone gets to go. Not everyone feels as though their condition is properly understood. And there are other issues that can crop up too.

So while most services seem to be doing a great job, there's still work to be done.

The Royal College of Physicians is creating a Pulmonary Rehabilitation Services Accreditation Scheme (PRSAS). The idea is that it will encourage the people who provide pulmonary rehab in your area to improve and develop their services. It should also give you more confidence that you're getting the service you need.

To make the scheme work, we need to hear from people who have been to pulmonary rehab. Can you help?

The Royal College of Physicians would love it if you could complete their survey - surveymonkey.co.uk/r/TCW2Z8S.

They're also holding an online focus group on the 27th of October, and need people to join in.

For more information or to join the focus group, please go to prsas.org/for_patients.

Thanks guys!

Bethany

14 Replies

Survey completed

BethanyBateman profile image
BethanyBatemanBritish Lung Foundation in reply to soulboy118

Thanks soulboy

I would love to be offered pulmonary rehab. I have IPF so would benefit.

I've completed the survey Bethany. I would recommend attending a programme to anyone with a lung condition. Unfortunately they are not always accessible due to lack of transport etc.. I had to travel 45 minutes each way to get to the one I attended.

BethanyBateman profile image
BethanyBatemanBritish Lung Foundation in reply to RoadRunner44

Gosh, that must be a really long day with all that travelling on top of rehab. I'm so glad you find that it's worth it.

beech profile image
beech in reply to RoadRunner44

Some people on my course were living on a tight budget so the costs of public transport or a taxi were a problem, and not surprisingly walking to the venue was an issue!

I will look at the survey, Bethany, but I just wanted to say that I was very disappointed when I attended a pulmonary rehab course at my local physio department for 6 weeks during the winter of 2015/2016.

The programme was not tailored to individual needs, the lead physiotherapist skipped the information talks each time he ran the ssession and very often the 2 hour session finished after 45 minutes.

Some of his colleagues did do the talks when they were running the session but the whole course was very disjointed. I still find it somewhat annoying when people praise rehab and highly recommend it as I could not do the same from my experience.

From my perspective, the aim of the Royal College of Physicians, if achieved, will be doing all with lung disease a service if the rehab courses can be accredited and be of a high standard throughout the NHS.

beech profile image
beech in reply to CDPO16

Wow! What a disappointment ☹️ I was lucky that mine was excellent, and was sadly terminated a week early by the start of lockdown; However, we were then told we had a direct line into the respiratory physios and hospital consultants if we had any Covid issues - that has been very reassuring.

CDPO16 profile image
CDPO16 in reply to beech

From what I have read on the forum most have had a good experience and benefitted from the course. I'm glad that yours was so good.

BethanyBateman profile image
BethanyBatemanBritish Lung Foundation in reply to CDPO16

That's awful. And just the type of thing we want to prevent by introducing the accreditation scheme. I hope you get the chance to go on a better course in future.

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