Today I used the ambulance service for the first time to take me to an appointment with the respiratory physio. The ambulance service was wonderful both ways. People used to looking after the fragile. Only reservation is they said be ready 7.30 (appointment 9.30) . They came 8.45. Getting up at 6 to be ready 7. 30 was not easy. Only mid morning appointments from now.!!!
Then the appointment. I had a one to one with the respiratory physio for 1 hour. I I was referred by my consultant h because I hyperventilate a lot. She asked lots of questions, listened, and made suggestions. Then she has given me some exercises. I came away thinking the nhs is wonderful.
I’m three years into this Sarcoidosis disease. And on the whole can only praise the nhs for their care. At the moment I’m fighting lengthy prednisalone withdrawal symptoms. The nhs seem to have really supported me . I’m lucky too as my gp is very supportive too. I’ve reduced from 5mg to 3mg but I can only walk for 11 minutes without stopping. A previous 7 minute walk takes 30 minutes with lots of breathing stops. When I can walk 15 minutes without stopping I’ll cut to 2mg. If anyone on the forum has any hints, would love to hear them. If you think a respiratory physio would help, ask your gp or consultant.
I’m really enjoying all the poetry , so well done all of you for keeping my spirits up.