Vitamin D research

LAM action found that that Vit D protein is 2/3 lower in LAM patients.

So they also measured Vit D levels in blood and found they were lower than normal.

All that improved with Rapamycin

I must say in my case my Vegf-d ( LAM bio marker) is lower since I have started on Vit D and I am not on Rapamycin.

So they looked at other lung diseases patients and found that vit D was generally lower than the norm.

So check your Vit D levels, take your vitamin and enjoy the sunshine!

Link: lamaction.org

[2greys]

Good morning Fran. Yet more evidence that vitamin D holds such a huge importance to our health.

[Hidden in reply to 2greys]

Good morning 2greys, what I am wondering is how about absorption.. well for me as I have LAM so this trait is in my genotype.

Still you know there has been a trend for years telling people dairy was mucus forming etc, so avoidance was better..I think it was detrimental because people confused dairy and lactose. Now we can have lactose free food, if we are intolerant.

Also we know we have long grey winters but now we have such hot summers and told not to go out. All in all our natural exposure to Vit D must be quite low.

Despite taking a Vit D supplement I was still under the norm so I have increased my vit D to 2 X 400 Solgar soft gel capsules as recommended by my GP. Will have another blood check in 3 months.

I am also on steroids which lowers vit D effects.

I didn’t get into LAM specifics but they also found another protein we have too much of called a1AG1, alpha-1-acid-glycoprotein, which is 2/3 higher than normal. And I am more interested in that part of the research.

Professor Johnson didn’t expand about that I think research is still going on. It was done on 160 patients.

The aim is to understand the severity or not of the disease in certain patients. He had a graph with 3 types Fev 1 in patients the red line sinked very quickly, the blue slowly, and the green was more or less horizontal so stable..

I found it very interesting. The video dates from 2017 but has just been published by LAM Action on Facebook.

Have a good day x

Fran

[sassy59]

Thank you Fran, very interesting. Keep up with your healthy positive attitude. Have a good weekend. Xxxxx ☀️😘💖

[Hidden in reply to sassy59]

Thanks Carole 🌸💕🌼

Have a good day!!

Fran xx

[Hacienda]

Hola Amiga, Interesting ,Yes, After Living in Hot Sunny Climes, like Yourself, I felt the Difference being back in UK during my first Winter Here..(2013). I do take Vit C & Evening Prim., Calcium prescribed. Vit D has helped, I think? With our Summer happening now I had stopped taking it , but I will Continue in Autumn. What doesn't hurt you etc... Hace un Buen Final Semana Chica, y Bea y Aria tambien. Besitos XXXXXXX

[Hidden in reply to Hacienda]

Hola Carolina,

I don’t expose myself much to the sun. I have a skin cancer risk and had a basocellular out a few years back.

So I have to walk around or swim with a 50 sunscreen feeling all white and sticky!!😃

Springtime sun was nice enough but at the moment I only walk on shaded pavements!

Enjoy the summer xx

Fran 🌼☀️🌸💕

[Hacienda in reply to Hidden]

Thank You Fran, I am sorry you have had this experience. I do love the summer, Yes I do use sunscreen and always under the Parasol , or not when de-heading the flowers. Then back under parasol. I do believe I have been Lucky re skin Cancer, during the early years of Life in Spain when one doesn't know any better, But it does affect your skin, I do have eczema sun related. I feel for all the children Now who will Grow to have these Problems even though Screening is of high Priority. xxxx

[Hidden in reply to Hacienda]

It is such a personal thing..I am blue-eyed white skin and a good candidate for melanoma apparently..I was told I had used my sun capital! Sniff loved the sunshine..

But that’s life xx

Enjoy!!

Fran

[skischool in reply to Hidden]

oop north we should have vit d by i.v my happy friend,on a daily basis and factor 1 sun tan lotion.have a very sunny day Fran

Blue eyed ski's and an anaemic scruffy

[Hacienda in reply to skischool]

Hi Ski's & Scruffita. xxx

[skischool in reply to Hacienda]

hola mi querida,sorry i haven't been in touch,been a bit poorly,my super heroine anne told me you were concerned,thank you for both thinking about me and i am bouncing back nicely now,shame that the scuffy one was not equally concerned but what do you expect from a furry feline.

abraza carino y esperando que todos se bueno contigo xx

[Hacienda in reply to skischool]

Just made my Day ,To know your on the mend.. Gracias Carino y Gata Mala.Look after your Dad. Abrazos tambien con Besitos. xxxxx

[Hidden in reply to skischool]

Hi Skis 🎿 yes from childhood up north 😂and from « kittenhood » for Scruffynounette 😜

It is raining ☔️ today and we love it 😍

Have a nice footie weekend xx

Fran

[skischool in reply to Hidden]

ooh you are strange happy friend,nobody but residents of the Atacama dessert should love rain.i bet you have footie on prescription,it is in your dna is that a LAM thing lol xx

[Hidden in reply to skischool]

Hehe Cheeky Skis😉 which desert 🌵🐪 ??

I only know the Sahara sorry 😃

Well you are right, Football 🥅 ⚽️ is listed in my positive proteins, especially the PSG one, very enriching 😃. Sport and socialising my dear friend..I don’t know about Chelsea it hasn’t got capital letters apart from FC lol

Xx

[skischool in reply to Hidden]

So you have never heard of San Pedro united,currently leaders in the Atacama desert football league(they are the only team)situated in Chile/Peru xx

[Hidden in reply to skischool]

Never!! I’m so European my dear Skis, the rest I only know from the Blue Planet 😃 even more so now I can’t travel by plane, my grandest dream is to take Poirot’s Orient Express..to the end of the line added Bea.. and back I would say 😊

[skischool in reply to Hidden]

Do it my happy friend,you and Bea were looking for a break and you can get me some delicacies from Istanbul before your return and i bet for a small fee they would accomodate Aria.

xx

[Hidden in reply to skischool]

On my bucket list Kind Skis xx

[breatheeasy1]

Good morning Fran, a fascinating post thank you 😊. I suppose its easy for vitamin levels to be low without even knowing it...and with high factor sunscreens and a tendency for people to stay inside, it's worth checking!

I hope you're well at the moment and not suffering too much from the weather. Lots of love to you xxx

[Hacienda in reply to breatheeasy1]

Thank You Anne, Ski's has been intouch. XXXXX

[Hidden in reply to breatheeasy1]

Morning Anne💓

things are fine thank you. Always better when you are on holiday. 🌸

Hope you have had a reasonable motherhood rest 😉

It is raining today!

Have a nice weekend x

Fran

[breatheeasy1 in reply to Hidden]

Ah well I'm glad you have a break from the summer heat for a while 😎 Its too hot here at the moment. Mercury hit 31 yesterday 😥. A little cooler today with some cloud. But yes it's sheer bliss not having to be up early and wrestle them all to school...😊. That in itself is heaven.

Have a lovely weekend too 😙❤

[Hidden in reply to breatheeasy1]

Rain lasted 5 mns! It is unbelievably hot and heavy. We stayed in, went to the local swimming pool to cool down.

Glad you are not wrestling with the school run.

Love 💕

Fran xx

[Hacienda]

My Daughter arrives here next Wednesday, Just been talking on Wassap, She Said coming to Cool Down. Spain has 47 Degrees, I could never Breath there if I had stayed.. xxxxx

[Hidden in reply to Hacienda]

Saw that on tv 😮

I said to Bea imagine if you had still been working in Barcelona!

Glad she is out by the Alps!!

Xxxxx