Hi I am 32 years old, and have a rare lung condition called Pleuroparenchymal fibroelastosis. ( PPFE )
Before i share my story in more detail, i wanted to knw if anyone has the above lung condition, i have read up alot on PPFE it is similar to Pulmonary Fibrosis, but there isnt anything out there in terms of treatment etc.
It would be nice to here from someone, as i feel I am the only one with this condiditon. It would be good to share thoughts and information.