A belated contact

[Walkwalkwalk]

I have just made my first contact in form of a response to laf1977 re PPFE and it occurred to me that I have not introduced myself

I have been sitting on the sidelines of this group for sometime and have felt so much admiration for the depth of knowledge. I have not contributed as it seemed that so much good information was readily available. A poor reason I feel given how much support is offered so freely and the genuine care that is demonstrated

I was diagnosed with IPF in 2006. and PPFE in 2016. There has been a rollercoaster track in my search for well-being , shadowed by this illness, that I have travelled.

At present I have been working on getting back to a level of stability following an acute-change which has cardiac involvement. It’s more coasting than rapid downhill , at the moment , and that always feels great and something for which to be thankful .

So I’m off the sidelines I hope over time to express my appreciation of all the posts that I have valued over time

My very best wishes

[HungryHufflepuff]

Hello and welcome 😊

[Katinka46]

Welcome to this group. You are right: there are many knowledgeable people here, but as important or even more so is the friendly support that is offered.

All the best and keep posting

Kate x

[sassy59]

Looking forward to getting to know you Www and thank you for your informative post. This is a wonderful forum full of kind and caring people so I’m sure you’ll fit right in. Take care xxxx💜💖

[Damon1864 Volunteer]

Hello nice to have you with us, looking forward to reading your posts, have a good night and take care 😊 Bernadette and Jack 🐕 xxxx

[RoadRunner44]

Hello and welcome, So, you have taken the first step and posted on our Forum. Good! I joined this Group over a year ago and like you, found it was the best thing I could have done. Yes, there are lots of knowledgeable people here who actively support us all in many ways. It is also unique with its friendliness and concern for other members.

I suffer with a number of health problems including the lung disease bronchiectasis. The advice I have been given has been so helpful. Nice to hear from you.

[Hidden]

Good to see you here. 🙂

[Kimlu]

Hi nice to meet you. I don't know what I'd do without this group, its my lifeline. Keep safe x

[CDPO16]

Hi and welcome, Walkwalkwalk

[Kristicats]

Hi WWW nice to see you on here . Cx

[madonbrew]

Hi WWW,

Welcome! Really hope you’ll find some useful information here, along with the support and care and giggles 🤭

[Tree20862]

Welcome!

[illawarra]

Welcome to the group Walkwalkwalk. I agree with others comments it is an extremely, friendly, caring and helpful group. Best wishes and thank you for your post. xx

[Aingeful]

Thank you for posting.Reading that you were diagnosed with IPF 14years ago is very reassuring for me. I was diagnosed 3 years ago and if you read the internet we should have both been dead by now!! My consultant told me not to read up about it as these are only averages but it's hard not to worry.

[Izb1]

Hi Walkwalkwalk and welcome to the site, so glad you have joined us x

[Dedalus]

Hello - nice to hear from you, and look forward to seeing more of you.

[Jaybird19]

Welcome, very friendly group.

[Timepiece]

Welcome to this wonderful site . . . hive of information. ⏱