How concerned should I be? My O2 level is usually 92/93 at rest. As soon as I start to walk, it drops to 87/88. If I walk on a slope/upstairs, it can drop as low as 74. I recover within about a minute.
It's been suggested that using vpap should improve this, as I have atelectasis as well as reduced total lung capacity due to severe kyphoscoliosis. I've been on vpap since 1st June and I've been 100% compliant - over 500 hours' use. Should I 've insisting on ambulatory O2? Whilst I would rather not have the hassle of using it, I'm concerned to avoid organ damage. I'm losing height due to the collapse of my lumbar spine. I'm 10 inches shorter than I should be so I think my organs are suffering enough without the addition of oxygen deprivation. I have a good team of doctors and I'm seeing them on 29th August. How should I deal with this problem?