Why do the simplest things now take an age? Yesterday I made a lasagne for people coming to stay - It took me so long you could have read War & Peace twice over. Watching me in the kitchen - was like watching an action replay at the games in London.
I find everything is now such an effort. You wouldn’t of thought it impossible to get out of breath with the challenge of cutting an onion, slicing mushrooms or dicing a carrot.
Preparations for our friends coming over have been underway for some time. They don’t know I have IPF. They stayed the night and my Mrs and I were so worried about what shape or form I’d be in while they’re were here.
Would I be doing my Gollum impression - coughing my lungs up as I do a few body shapes on the stairs on the way to bed - or will it be more like a scene from The Walking Dead. A zombie nightmare!!
I've had to tackle and encounter friends visiting before!!! Not sure if I managed to hide my breathless symptoms - which sometimes sound like a naughty phone call - but a few smiles and my lovely wife making excuses usually does the trick.
Our friends arrived late because of delays on the road. To my advantage - as I had more time to get ready - In other words SLEEEEEEP!!! I seem to be doing so much napping of late. Bit like Churchill the nodding dog.
I’m normally one of those chatty types but I’m now more content in playing the part of a listener. I’ve changed my talking tactics to that of an interviewer and let others take on the job of chin wagging. I get so out of breath talking which leads to me on the verge of a panic attack.
Things didn’t go toooo badly overnight - I had the usual restless night and got at 4:30am coughing but managed to head to the bathroom and get close up and personal with the bathroom towel to muffle things.
They’ve gone now and I’m gonna be honest - I wonder if I’ll ever see them again. Will I get a transplant or not. I sympathise with you all here and know how tough for everyone. Reading your blogs, thoughts and comments really help and your advice is invaluable. THANKS