Long term conditions nurse

does anyone else have a long term conditions nurse?

apparently there role is to prevent hospital admissions.

how do others find there long term conditions nurses?

[skischool]

In our trust in theory the long terms conditions team attached but independant of your local hospital and who are community based are designed to establish a long term care plan consistent with your condition,their remit is to achieve this within 12 weeks,this should include referals for PR courses,physiotherapy etc and then sign you off and return your care to your gp.Your respiratory nurse is normally somebody permanently attached to the respiratory team of your local hospital or wherever your main consultant resides and supposedly looks after you under the guidance of your consultant.I personally have found that the long term conditions team talk a good talk but are fairly ineffective in delivering anything and that the respiratory nurse should be the one with the expertise to properly maintain your condition and if neccessary escalate matters if required,good luck xxx......skis

[Hidden in reply to skischool]

my long term conditions nurse cannot be a 12 week version because she says she will visit me every four months for a review. that works out at three visits a year unless i contact in between times.

[Hidden]

I seen leaflet in my GP's did wonder why I had to find out myself about them .... anyway never bothered as thought be just as bad as my gp's

[O2Trees]

Hi julieVictoria, I have a respiratory nurse whose specialist community respiratory team is part of the long conditions team. I can phone her for advice and I see her twice a year for oxygen check-ups, but the long term conditions team covers out of hours and weekend emergencies. I don't have a particular nurse there though. The system works very well - policy seems to vary in the trusts around the UK as to exactly how LTCs are dealt with but the common aim would be to keep people out of hospital.

[1redkite]

Hi yes I have a COPD nurse and a seperate Diabetes nurse. There are also several other specialist nurses at our practice.

They are very good and will refer you to a doctor if the feel the need to.

[katieoxo60]

Hello JulieVictoria, have to admit that's a new one on me. I see the practice nurse once a year for varied tests for my breathing problems. I see my GP once every three months by mutual agreement due to taking painkillers regularly. I have no written formal care plan for my long term illnesses and no longer see a consultant at the hospital. Would love to hear more about these long term conditions nurses. In my area there is an outreach team for respiratory care but it is mainly used for those with end stage COPD or severe cases effecting daily activities.

[Hidden]

What a joke! Where I live ( Warwickshire) we have no such luxury as a long term condition nurse. I have never heard of one. The respiratory nurse at our practice admits that she can't even say bronchiectasis and knows nothing about it and a lovely physio has been trying to get me on to PR without success so is now trying to go the route of cardiac rehab as I also have two heart conditions.

[gingermusic]

Yes here in Hertfordshire most of us arte put under the care of the Pulmonary nurses which at times can be very handy as they will come out and assess me at times when I cannot get an appointment with my GP so I think its a good thing.

[shadow4me]

We have a resp nurse who we see once a year for a review ,But I cant say it would help keep out of hospital a quick 10 mins a year x

[andyput]

I see a copd nurse once a year for a inhaler review at the doctors, I see a respiratory nurse twice a year, and can contact her any time she can get me medication from GP if needed. I see consultant every 6-7months.I also see a oxygen nurse twice a year. They all work together so no conflicts.