Another hurdle : Hi when is it ever... - Lung Conditions C...

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Another hurdle

Time_2_drink profile image
38 Replies

Hi when is it ever going to get a bit easier at the moment panic has set in on a grand scale might seem unbelievable but writing this to you my friends on this forum is helping me focus a little don't know if it makes sense .Like you may have seen on my post last night I had a major meltdown and I frightened myself and my husband was unable to sleep but stayed in bed till after 1pm .I forced myself to come downstairs Albet still in pjamas unbearable sweats again all night .Whilst in hospital had letter from hospice to go to a be in charge meeting on Friday when I went for assesment some while ago I was told I would probably need extra sessions I felt a real need to talk to someone so I rang them up and was told they will do there best to help .When I was in hospital I agreed to see a psyche councilor so I rang up and let them know I had been discharged I found out that I was yo have seen someone this Wednesday in the hospital the person is not in till Wednesday so not sure what will happen .I then had a phone call from the community matrons and was told I am of the books because I was in hospital above 72 hours so a referal has to go back through the doctors again and we know how long I initially waited to get a matron I am sat on the chair same spot as to when I got up getting more and more afraid Frank has been to the library and brought me two books to manage stress will give it ago sorry for the waffle x

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Time_2_drink profile image
Time_2_drink
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38 Replies
sassy59 profile image
sassy59

It's good that you can post on here and focus on speaking to us. There are others with anxiety so you are not alone.

Hold onto the thought that you will get there and things will eventually improve. You will get the help you need. Xxxxx

Time_2_drink profile image
Time_2_drink in reply to sassy59

Thank you sassy I would be at a loss without it and I try to focus as much as I can though can be difficult and I want to be able to get in to a position where I can be of help to someone owing through similar things xx

Busybee57 profile image
Busybee57

Hello T2D. good to know that you are back from hospital. Best thing for me when i start thinking about things is practising being in the now x the power of now is a book to read and just being able to focus on the current time/place/ activity can really help. I am still waiting for diagnosis but likely to be bronchecstasis x. Hope you feel better soon sending love your way xx

knitter profile image
knitter

Have you tried word puzzle books to try and distract you from the anxiety.....I find them better than colouring books to take my mind off the panic.

Time_2_drink profile image
Time_2_drink in reply to knitter

I am going to start doing crosswords again and maybe start to read again you may not believe this but every day since December I have carried a book around with me I have not opened it yet but cannot settle if it is not in sight something I used to love was quizzes we used to go to one every week when life was normal

Time_2_drink profile image
Time_2_drink

Thanks I really need a focus like I have said I feel I am going backwards not forward and I have hot myself in a really terrible state to the point where I am becoming scared to move position I know it is irrational but that is what today has been like sat sweating in pjamas with a real feeling of trepidation very scary I must learn to conquer fear xx

Pam1952 profile image
Pam1952

There are some amazing books available by a lady called Dr Claire Weekes.....these are on anxiety, depression etc and are available on Amazon. They may be available at your local library. A good title to start with would be Self Help for your Nerves, but they're all very good. Hope you find something that helps.

Take care. Pam XXX

Time_2_drink profile image
Time_2_drink in reply to Pam1952

Thanks pam will look it up just had doctors surgery on phone now telling me I can't have build up food that matron was getting me I need to buy my own Frank made me a lovely meal but unable to eat anything xx

Pam1952 profile image
Pam1952 in reply to Time_2_drink

Do try the books. I'm sure that they'll help you. You must get some calories down you, essential for mind and body! I'd challenge the surgery on changing their mind about the build-up food. XXX

Time_2_drink profile image
Time_2_drink in reply to Pam1952

Have ordered the book of Amazon thank you I am sat here absolutely dripping with persperition feeling helpless hopefully book will help a bit xx

Pam1952 profile image
Pam1952 in reply to Time_2_drink

I do hope so. XXX

Time_2_drink profile image
Time_2_drink in reply to Pam1952

Hi pam thought I'd let you know Frank has googled to see if our library has the book it does but it is on loan overdue couldn't make it up xxx

Pam1952 profile image
Pam1952 in reply to Time_2_drink

Typical! Can you reserve it? Or try another title.....she's written several. I used to work for MIND and we had a shelf full in our library. Can't remember all the titles unfortunately but another one is More Help for your Nerves. Good luck. XXX

Time_2_drink profile image
Time_2_drink in reply to Pam1952

Hi he just been to library apparently they close at 6 now they are closed tomorrow going to send for it on amazon I think I have read the pages which were available to read seems sort of thing that I may benefit from fingers crossed x

Pam1952 profile image
Pam1952 in reply to Time_2_drink

I think that you'll get a lot of benefit from it. Hope so .....I did . XXX

Delahunt profile image
Delahunt in reply to Pam1952

Hi am am new on hear but breathing excerises help & inner thoughts turn s negative into s positive telling yourself to cailm down that you are stressing & listen to your inner thoughts to turn it around now that you know you & are aware & know your having a panic attack . I done this self help myself to distinguish wheather it was my anxiety or my health lung condition to ensure I was being treated for both . Also given the correct medication because everything can not. R down to just anxiety . Self control & balance off anxiety & lung condition will then be treated & you will master anxiety without it geting high rated out off control . Example if your lungs are playing up like being short off breath or you had a pain in your chest . Cailm down tell yourself your anxious if When claim symptoms remain than you know it's your lungs or heart etc. But if you let your health condition combined with anxiety than it's s going to be a constant circule & the focus from doctors will be treating you just as an anxious patient & realy the problem could be your longs are worse or your not on the right meds for your lungs . So to ensure you are treated for both try & recognise yourself which is which that way you will be on a focused statecofc mond & remain in charge off your mind emotional needs . Then when both are stable read a book do do what you like best . Feel anxiety creeping in you will recognise it & self talk before your heart starts racing & you start hyperventilating breathing . That will stop happening . So if it's your lingd heart it any other health condition you will recognise the differences & will help doctors also an absent temp is good . Anxiety no temp etcabivr mentioned . know the symptoms & doctors or other professionals can not just put it down to you being just anxious. As then if it was your health better for you & the outcome . I had to do all mentioned in the past because my anxiety would impact on my chest & my lungs are vulnerable so I have to adjust & control my anxiousness to be able to breath . If I didn't or had continued letting my anxiety kick in my lungs probably would be even worse or ide be dead . So try hope I have helped in s positive way . Good luck to you Bernadette

Time_2_drink profile image
Time_2_drink in reply to Delahunt

Thanks for your post Bernadette i do understand what you are saying and I am trying the best I can to overcome the anxiety but it is so very hard as I think you also know .When I have pain under breast and am also in the midst of a attack of the sweats it is hard to focus on anything but got to keep trying best wishes

Time_2_drink profile image
Time_2_drink in reply to Pam1952

Afternoon pam the book as just come you won't believe it well maybe you will when I opened it looks like some one been reading it there is kitchen roll between some pages like been used as a book mark not got up yet we had our car broken into last night windows smashed sat nav and camera stolen I have not got up yet last night Frank turned my oxygen of instead of Internet I was just dozing checked my sats and they where 63 no oxygen I accused him of doing it on purpose I know he didn't mean to but he won't have concentrator in bedroom xxx

Pam1952 profile image
Pam1952 in reply to Time_2_drink

Goodness me! You do have some rotten luck don't you? There's been a run of cars being broken into for a few weeks round here......ours was done a couple of weeks ago, and all they took was the user manual, lol. I'm sure Frank was very sorry about his mistake 😨 and I do so hope that you enjoy your pre-loved book 🙄 ..hope it helps. Take care. Pam XXX

Time_2_drink profile image
Time_2_drink in reply to Pam1952

Thanks pam sorry about your car it's mindless hooliganism I'm waiting for a phone call from doctor at momment I can't put up with this pain any longer the oramorph just not doing it so asking him for help xx Margaret x

Pam1952 profile image
Pam1952 in reply to Time_2_drink

Good luck with the doc. Hope he sorts something out for you. XXX

Time_2_drink profile image
Time_2_drink in reply to Pam1952

Thanks I hope so Margaret xxx

mrsmummy profile image
mrsmummy

Try here for some help, they have some free guides.

Stress - shawmindfoundation.org/wp-c...

Depression - shawmindfoundation.org/wp-c...

And they have a forum on HealthUnlocked too.

healthunlocked.com/depressi...

Time_2_drink profile image
Time_2_drink in reply to mrsmummy

Thank you

Damon1864 profile image
Damon1864Volunteer

Please don't worry about having a moan we all panic at times. Its really good you are going to get some help atblong last. I really do hope this will help you. You just try to keep calm and remember you have people around you who care, and we are always here to turn to. Take care and please let us know how you are.😊 xxx Bernadette

Time_2_drink profile image
Time_2_drink in reply to Damon1864

Hi Bernadette I am sorry for being a panic merchant as I have been cruelly called pam 1952,has recommended book to me which Frank has sent for on Amazon so hopefully it may be a lightbulb moment .I have had a really bad night and day think it possibly been the worst last night I can't believe after all the problems I had getting a community matron I am now having to be re referred because of how long I was in hospital so rather than getting more help and getting to bottom of the pain and sweats inow in jersey position without support and additional illnesses to contend with I don't think I will ever get the help or support I need other than on here take care thanks for listening xx

Delahunt profile image
Delahunt in reply to Damon1864

Hi above message says from Bernadette ? . Must be another Bernadette on here on site as I just noticed the name & I assure you I did not write the message even if it reads positive . Just wanted to clear that up ? . My trade mark now at end off message will end Bernadette ?? With 2question marks thankyou

Damon1864 profile image
Damon1864Volunteer

Hope the books help, and please you have no need to apologise as long as you are alright that's the main thing. Chat soon, take care 😊 xxx Bernadette

Bless you...just a suggestion if you like music plug into some headphones or maybe some relaxation audio that will talk you through if you find you can't enjoy a book at the moment...keep posting if your typing here and it's reflecting how you feel then that's fine

Angie x

Time_2_drink profile image
Time_2_drink in reply to

Thanks angie at the moment can't concentrate on anything but I do intend to try x

Winterhill1940 profile image
Winterhill1940

Good Morning T2D- sending you sun and prayers from Florida. Yes, panic attacks seem to part of the deal. My face turns all red & funny looking. I went out for a walk on Saturday & found myself staggering across a busy street with every car at a dead stop to watch! Where the h,,,, did that come from? I had no choice but to continue until I got across. I am sure the drivers thought I was drunk or on drugs. Lot of that going on here. So, maybe it wasn't such a big deal. LOL.

Today I walked again without 'stopping traffic'...its not what you want at 77! I read, watch 'English" movies, music all the time. Avoid 'Trumpism" as much as possible. Reading the messages on the HU keeps me connected We are all in this together.

Large hug for the day. Stay well in yourself. mary

Time_2_drink profile image
Time_2_drink in reply to Winterhill1940

Hi glad you made it safe across the road. .I don't blame you for avoiding trump. Apparently we are having another election it all passed me by with being in hospital .These panic attacks are so awful and I know people say you don't die from a panic attack I wouldn't rule it out thanks for the hug Mary x

katieoxo60 profile image
katieoxo60

Anxiety is not unusual when you have ongoing illness. It is a shame about the need for re referrals but that is the system. It is good you can talk to the group and de stress a little. Understand sometimes things do get stressful especially if things go wrong or not to plan. I am sure some one will ring you about the physc appointment once they realise the mistake , but just to be sure you could ring them on Wednesday when the person is in , that is only tomorrow and you made it this far so only one more night. You can do it with help from Frank and support from the site who listen to you. Take care all will be well soon I am sure xx

Delahunt profile image
Delahunt in reply to katieoxo60

Ring social services tell them you have been discharge without follow up & your stressed & don't feel you can wait for doctor referral etc & have to wait again as this is impacting in your health & increasing your anxiety. That will have someone to ring you & come and assess you & will get in touch with the professionals you said you will have to have an other referral . Ring social services vulnerable adults explain discharge & no follow up & anxious have to await tefrrrsl again not acceptable as you will end up back in hospital in which you don't want happening . Am sure they then will chase it up & you want need a GP referral as they will do it . Realist the hospital on discharge should off done the referral if you missed out because you was an impatient . Good luck Bernadette ??

Time_2_drink profile image
Time_2_drink in reply to Delahunt

Thank you Bernadette my husband has been to the doctors and asked for me to be referred back to the community matron x

Time_2_drink profile image
Time_2_drink in reply to katieoxo60

Thank you Katie. I did ring and was told would pass message on .Frank has gone shopping so I said I would stay in bed but I got up dressed in a fashion and washed and come downstairs poor Frank one time he would kill for a lie in now I don't want him to get out of bed seems silly when I read it back but it is what it is xx

sarcoid1234 profile image
sarcoid1234

It sounds like you are not getting enough sleep, which will make things worse. Could you ask the pharmacist for Nytol (they make a herbal version) or something similar. I use it when I cannot sleep.

Time_2_drink profile image
Time_2_drink in reply to sarcoid1234

I am going to ask frank to get me some Phenargen. It has been reccomended. He was going to get me some before I went in hospital

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