Anyone have something good to say about Stiolto-Respimat?

[davis2334]

My father was just prescribed Stiolto-Respimat inhalation spray. I was wondering if anyone has any good experience with Stiolto? He was on Anoro but didn't like the powder inhalant.

[Toci]

I think this is fairly new in Europe so others may not have used it.

[Twoose]

I am in the uk and use spiolto respimat which I think is the same drug mixture which for some reason is called stiolto in USA and Canada. I find it very good and have not as yet had to use my ventolin rescue inhaler since I have been using the spiolto. In fact it has allowed me to live much more normally. I can even manage to keep up with my 2 year old granddaughter. I also have been able to get my fitness levels up but going to the gym and walking the dogs.

I hope this helps

[davis2334 in reply to Twoose]

Thank you for the response this sounds like it may be a good medication.

[jackdup in reply to Twoose]

Actually in Canada I believe it is called Inspiolto.

I was just curious what you were using before going on the Spiolto/Stiolto.

Thank you

[Twoose in reply to jackdup]

My go first put me on clenil modulate to treat me for asthma, a ventolin rescue inhaler then the next gp accepted that I did not have asthma and just gave me atrovent 4 times a day. That did not work either. I started withe an Fev of 38% by the time I saw a consultant it was 28%. I don't know what it is now 7 months later but I now average 4 miles of walking a day and go to the gym at least twice a week. Prior to the spiolto I struggled to walk 100 yards on some days.

[jackdup in reply to Twoose]

Wow, that is great, I wish I could do half of that, but I know I have to get out and start exercising.

Thanks so much, as that is very encouraging.

[Dedalus in reply to Twoose]

That sounds very positive - thank you Twoose x

[twopars12]

Hi Davis, I tried this inhaler a few months ago after persuading my GP

[twopars12 in reply to twopars12]

Sorry pressed the wrong key on my computer. Anyhow, yes, I tried this a few months ago and it was fantastic, I walked around as if I was free from COPD but after about a week my eyes were so very itchy and watering all the time as if I was constantly crying. I went back to my Doc who confirmed to me that the fluid keeping my eyes working was drying up hence the severe dryness. This was only due to the new inhaler. I was so gutted because the inhaler was so good. Now it was obviously that I could not tolerate the drug but it must be alright for others so I hope it is Ok for your old man. After all how do some smokers get COPD and others don't? I emailed Boherenger (not quite the correct spelling but close enough) who make the drug but to date I have not received any reply. Hope it goes well for your dad, all the best.

[davis2334 in reply to twopars12]

Thank you for the response. I'm attempting to get him to use the inhaler because I've heard of others having good responses to it. He hasn't taken it yet, after he read the side effects he has become some what leery.

[twopars12 in reply to davis2334]

Well all he needs to know is that it won't kill him. I felt so good after using the inhaler and it was almost instant. I would tell everyone to try it but sadly for me I'm back on my symbicort and Spiriva. I reckon every person on this site would eat their leg if it meant getting back to how things used to be, bearing in mind prosthetics have come a long way since Long John Silver.

[jackdup in reply to twopars12]

I believe one of the components is Spiriva and the other is supposed to be similar to Symbicort but without the steroid component, but they have found that the combination found in Stiolto/Spiolto seem to provide better results then the components taken separately.

That is too bad you were not able to tolerate it if it worked that well for you.

Do you mind if I ask what stage your COPD is?

Thank you

[twopars12 in reply to jackdup]

Sorry for the delay, been on holiday. Anyway I don't really know what stage I am at as the nurse hasn't bothered to tell me but I was diagnosed about 16 years ago.

[jackdup in reply to twopars12]

Thanks for the reply and I hope you had a nice holiday.

[MrsMurphy in reply to twopars12]

There's some information on one of Boehringer Ingelheim/Lung Foundation websites called lung learning that might answer your question. lunglearning.com.au/copd-ho...

It's a shame it was so effective for you but couldn't continue it. My dad is using Spiolto now and has been able to get back into his renovations and life without becoming breathless. (I've also noticed he's not needing to take such long daily rests too!). He is a past smoker/exposed to excipients that could cause COPD, and both his parents had COPD....fingers crossed I can avoid it.

[twopars12 in reply to MrsMurphy]

Mrs Murphy, thank you for that information. Having read it I don't think I am as bad as some of the others although I take inhalers twice each day. I have no cough and don't get exacerbation's and whilst I don't smoke, I try to avoid anything that will cause me harm.

[JoHarr in reply to twopars12]

"After all how do some smokers get COPD and others don't?" Genetic I think, about 25% of smoker get COPD, others don't, some get something worse!

[Hidden]

It is the only inhaler I use apart from the rescue inhaler that I rarely use.

Stiolto or Spiolto Respimat (in some countries) is the most effective inhaler I've used.

[jackdup in reply to Hidden]

Do you mind if I ask what stage your COPD is as it seems certain inhalers work better for certain stages.

Thank you

[Hidden in reply to jackdup]

I have severe COPD. You may well be right about different inhalers working better for the various stages of COPD.

[jackdup in reply to Hidden]

Thank you. It seems they use an inhaler with a steroid in many cases for moderate that is close to severe and in severe cases so am happy you are getting along good without a steroid inhaler being severe.

[Ribbon36]

I was actually just given that medication yesterday afternoon at the doctors office and took it the first time last night a couple of hours before bed. I have to say, I am not sure yet but I am thinking it allowed me to sleep much better than I have in some time. I also think I feel like I have a less stressful feeling as far as air hunger....I'm really not sure yet other than it has not hurt me and I feel it might hold positive possibilities!!! I just posted asking if anyone had tried it right before seeing your post....