Since the beginning of July 2016, I've been on 'The Active Transplant List for a single lung transplant' at Harefield Hospital I've been told, by one of my Transplant Co-ordinator Nurses that it's more difficult to get a single lung donor. I so wish I'd never learnt this! However, my surgeon said, "Within my experience, you should get your transplant within a year." I think, with a fair wind, good luck and only a few infections, I have about 2 years left. It's sort of Catch 22...........of course you have to keep 'fit' to stay on the list because the operation takes a lot of strength to survive and recuperate.
When I'm down because my life is so limited I hear '..... it's more difficult to get a single lung donor.' My darling husband, who is my carer and would do anything for me has Parkinsons Disease so it's very hard for him and like everyone who has someone care for them, I feel so guilty making him work so hard.....as if his burden isn't bad enough, he's got a hernia!!!! He's having an operation next Wednesday and then we're staying with friends for a few days to get over my husbands operation My life is very limited .............. I'm so sorry to whinge
We have agency help in for 2 hours a week and a dear friend helps too another dear friend used to help us but she's now got heart problems, poor thing, so of course, she must look after herself bless her
Can anyone tell me any uplifting stories about getting a single lung transplant please? That would be such good medicine
I have had a very good innings tho' I had a lung removed because of Lung Cancer in 2000 even though it was a late diagnosis (Due to a filing error!!!!) But it's natural to want more isn't it? If I can get a transplant, I can look after my dear husband who is such a treasure We've been married for 36 years and we're still nuts about each other!
Thank you everybody This is the first time I've posted anything - I've replied, but never started any discussion Thanks and best wishes Petto X