Relapsing Polychondritis

Okay so after moaning about waiting for a diagnosis last week I have now received the news that my results strongly suggest I have the above condition which is rare. It appears to only be affecting my trachea/bronchi but the research I have carried out so far paints a fairly bleak picture. Any good support groups, research, articles anyone knows of for me to look at?

3 Replies

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  • Long words which I'm afraid don't mean anything to me!! Why don't you try the BLF Helpline - they might be able to point you in the right direction.

    Good luck, and do let us know. By the way, anything you Google sounds bleak!!

    Sue x

  • Can try patient.co.uk type subject and can reply to other suffers

  • Look on facebook for relapsing polychondritis, there are 2 support groups. The .org in USA is the best one. I have found this group to be excellent support and give great information.

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