Seeing consultant

[June24]

Seen doctors yesterday been told I have sleep apnea and something else if have already forgot as well as copd end result was I was went home with a forced air machine to use for 7 hours a night I feel sick at the thought of it has any any information on these do they help and is there anything that can make it easier

[Mandy6513]

I use one for C02 retention

Once you get use to it you will probably find it relaxing , i do.....Its just getting the right mask that your comfortable with thats the hard bit

Dont worry

[June24 in reply to Mandy6513]

Thank you have you been on it a long time and has it helped any breathlesness

[Mandy6513 in reply to June24]

I have been on it about a year now ...I have mine because im c02 retainer so dosnt do anything for my breathlessness..

Have they given you a full face mask or a nasal mask

[June24 in reply to Mandy6513]

They have given me a full face mask thanks

[Mandy6513 in reply to June24]

ok....i had the full face and struggled with them so now use the nasal ones so just be aware there are a few different ones to use if you have any problems

[Toci]

My husband has one and hated it for a fortnight and now looks forward to putting it on so that he gets uninterrupted sleep. His sleep apnoea had him waking so many times each night that he got up exhausted but now he feels much better. Once you get used to it I hope you find it as useful as he did.

[peterjones]

june 24 HI miss sleep apnea i have had mine for abut 5 years I have just tried a new machine out its a phillips and I have a medium size mask it does help because i was having 52 apneas an hour since I tried the new machine and mask I have about 2 or 3 I feel I'm having deeper sleep which is good for me as I have progressive supper nuclear palsy as well do i not expect you have heard of it\\ that s ok not many people have \\ where i live there is only about 1500 of us so its pretty rare in the uk where y ou live I take it ,there are about 4000 by the way I live in Australia mate

as long as you put the mask on right you are home and hosed matey just so there are no leaks around then edges and the air is going in the right place mate you will be fine you can always contact your sleep bloke if you are not sure of anything matey

see yer mate good luck with your sleeping ect take care peter jones queensland Australia psp sufferer

[June24 in reply to peterjones]

Thanks very much for replying it was very helpful hope you keep well

[June24 in reply to peterjones]

Thanks Peter I am getting a tiny bit more used to the machine at night don't seem to be panicking as much hope you are well

[2malinka]

Hi June

I have a NIPPY machines too. I was given mine because I have severe COPD and am a borderline CO2 retainer. Also suffer with insomnia. Like you when first given one I was scared but the staff at Harefield explained how to use it etc. I have a nasal mask not the full face mask so it is easier to wear. I was also prescribed Lorazepam to help me sleep, because even wearing the mas I still wasn't sleeping. Also prescribed sleeping pills which I take now and again. I feel much more alert during the day. Once you get used to the machine, you should start to feel better.

Let me know how it goes.

Take care

Malinka

[June24 in reply to 2malinka]

Thank you for your reply it is good to hear that most people seem to get used to it I just hope I'm one of them,it terrifies me

[TheRecyclist]

Don't be frightened! Like most of us, you will probably look forward to using CPAP every night because it is very relaxing. The trick is to get the right mask that doesn't leak, make rude noises or blow into your eyes.

VERY IMPORTANT : I hope the clinic told you that once diagnosed with Sleep Apnoea, you MUST NOT DRIVE until the clinic say so. My nurse didn't tell me, so effectively I was driving without a valid Driving License and therefore no insurance. Fortunately it was only a few days! If you go to the DVLA site, you can fill in the declaration there once you are deemed fit to drive again.

[June24 in reply to TheRecyclist]

Thankyou for your help I don't drive so that's ok I didn't know you can get nasal masks I feel that might help thanks again