I posted here a while ago about suspected brinchiolitis obliterans. A few of you replied, I haven't gotten around to responding yet but just wanted to say thank you for your support and I will reply individually.
After I posted I suppose I had a mini meltdown/breakdown of sorts. I've been treated the past 8 years from bronchiectasis and asthma. I knew things were getting worse but had no idea how bad they had gotten plus I just had my first baby. So to get news that they think it's that horrible disease...well it all got to me, hence I'm only back now. I decided to stop googling and reading too much info on it and gave myself a break.
My respiratory consultant was pushing for an open lung biopsy but after seeing how upset I was, said we could try 6 weeks of intensive therapy. So we did that and I repeated my PFTs. (The last ones had a FVC1 of 48%). I went back to him last week and I'm up to 63%. The first increase in 6 years. He cannot believe it or explain it. I've been dropping FVC1 at a rate of almost 5% a year. So surgery is off the table for the moment although he still believes I have the disease.
I feel like I've won the lottery!!