Hello all, I am new to this online forum thing and I am just looking for help and support. I have had Polycystic Kidney Disease (PKD) since being diagnosed with it at the age of 13. I am now 48 years old.
I have been in and out of the hospital for multiple lung problems and lung infections/diseases. I have been recently told that I need to get a lung transplant.
I just want to know if there is anyone out there that has had PKD and gotten a double lung transplant or if it is possible for someone who has PKD to receive a double lung transplant. I would also like to know why a doctor would deny me a lung transplant when telling me that my PKD would not affect the lung transplant at all. I would also like to note that I am not having any issues with my PKD and haven't had any my entire life. If there is anyone out there who can point me in the right direction, it would be greatly appreciated. I am not above traveling out-of-state. I live in North Carolina.
Thank you all in advance for your help and support.