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British Lung Foundation
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Diagnosis

I was diagnosed three weeks ago with COPD. My doctor says I am stage 3. What's happened to the first 2 stages?! Got a Spiriva inhaler today so hoping that will help. Already on Ventolin and Seretide as am asthmatic.

Hope everyone has a great weekend and hopefully we all get good weather!!!

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Hope the spiriva works for you a lot of people us it with good effects but i didnt get on with it ...fingers crossed.

Have a lovely weekend x

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Thank you Mandy. Sorry to hear that you didn't get on with Spiriva, have you something that does work for you? Xx

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What happened to stage 2n 3 was we were ignorant to the fact that we were heading for this outbreak of lung disease and for the past 10 yrs ,nothing really happened at the asthma yearly app. You were given an inhalor ,told to get on with it???? So now it's all go once realised the mistake medical want to move forward and now lots of help ,it does not have to be a death sentence anymore ,we can leed a good life with abit of care n the correct medicine ,good luck .enjoy everything.

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Thank you. You are right about being given an inhaler and get on with it! Will do everything possible to stay as healthy as possible xx

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Hi Lynn

Hope the Spiriva helps you out. How are you doing? Let us know how it works for you.๐Ÿ˜Š

Rubyxx ๐Ÿ˜Š

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Thank you Ruby. Am hoping that the Spiriva will work miracles!!!! I will let you know how I get on xx

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Hello Ruby, I have Bronchiectasis and take Ventalin and Saline inhaler, but I still cough a lot , would Spiriva, be any good for me ? I have never smoked in my life , but they think has been infected due to Acid Reflux in my stomach.

Regards

Jimmy

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Thank you for passing this information on to me .

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Yes I have spiriva respimat. It is amazing, calming effect, very popular at the moment,my one goes straight into the lungs Tiotropium. Not the small one it's longer. Very good .

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Thanks, am hoping that it will help me xx

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Hello Lyn1951. I was diagnosed with angina just over 4 years ago. I blamed the rollups so gave up smoking. I could do everything as normal until then but about 8 weeks after giving up I found I was gasping for breathe. After getting proper tests I was diagnosed with very severe COPD Stage 4. No 1,2 or 3 for me !

If you haven't got one already, ask your doctor to refer you to a pulmonary consultant. They will give you a proper test and subscribe the correct medicines suited to you. My general well being improved immensely after I met mine.

:)

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So sorry to hear that you are stage 4 and there I was wondering how I missed the first 2 stages and you missed 3!!! Have to go back in 2 or 3 weeks to see my doctor so will ask then about seeing a pulmonary consultant and also ask for pulmonary rehab. Pleased to hear that your health improved. Take care xx

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My advice is to keep as active as you can. I still do the part time job I was doing before being diagnosed. I do most things but take longer and plan ahead. I used to stop 4 or 5 times to get up the 14 steps to my bedroom. I now do it in one go and mostly only get slightly puffed. I rule it rather than it ruling me ! :)

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Am impressed at how well you are doing. I have mobility problems (am classed as disabled) due to an accident four years ago so it is very difficult to exercise. Do have walks (slow ones! ) every day as I have my faithful companion to take out. Just love my JRT he is nearly eleven. Brilliant that you rule it and not the other way around xx

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This is not a nice thing to have, I have been going down hill with it for the last 4 years, other than all the tables I am on a oxygen machine 18 hours a day.

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I agree that it's not nice to have! Sorry to hear that you are on oxygen 18 hours a day, just hope that it helps. Look after yourself xx

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I think that a lot o the time we plod on with the little niggles like asthma etc. and as we get more mature we just put all the things down to that and carry on, then all of a sudden you want to do what you had no problem with and you cannot. I had a bad infection in 2008 and finished with a 76% lung function by the time my GP's agreed to a spiro in 2012 I was 57% With RLD , PH and Diaphragm Paralysis but they think and I do agree I had the Diaphragm Paralysis earlier to my infection as I went swimming and could not breath some years earlier which is an indicator. I just put down to being less fit.

Be well

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Yes, we carry on, just thinking that 'old age' is catching up with you and the fact that you cannot do what you did 20 or so years ago! Have to admit that I was surprised (and shocked!) that the doctor thought it could be COPD, never gave that one a thought. But at least now that I know I can adjust to it. Hope that you are getting on ok xx

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hi lyn I was the same for years was troubled with lots chest infections and breathing getting worse, my doctor told me I had suspect copd. wasn't until last year when doctor referred me to respiratory clinic, then I got appointment go there in December and first thing they did was give me a spirometry test. then a consultant told me I was last stage very severe copd with a fev1 of 18%. so I just jumped from beginning to end lol. then at my last appointment the consultant told me that I will need a transplant. stated tests for that now. but the fact I still manage bit of work helps. keeps me active.

plus pulmonary rehab.

tam

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Hi, my goodness that must have been an enormous shock to be told that you had severe COPD. Can only hope that you get a lung transplant ASAP. You are amazing to still be able to do some work, that makes things a bit more 'normal' for you. Take care of yourself xx

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You have had some great replies Lyn so I just want to wish you well and say have a good weekend. Hope the sun shines for you and everyone. xxx

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Thank you. There are some amazing people on this site. I don't feel so isolated now as you all understand what each other is going through. Having a very quiet weekend as am worn out with having an extra busy week! The sun is shining here, it looks glorious! Xx

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I'm at work in the lovely sunshine !

I do use oxygen. 15 hours a day recommended. It's a very low dose of 1/2 litre/ min. There is 21% oxygen in the air and my dose equals about 22 1/2 %, so not too much of a difference. As I work outside I don't need it at work.

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Hi Puff, I`m asking you because I think you seem to know a quite a bit . I`m on 3lpm continuous ambulatory oxygen. A member of the COPD group I attend is on 2lpm pulsed for ambulatory and 15 hrs a day at home. Why does she need it at home if she only uses 2lpm pulsed ambulatory? I`m hoping to avoid oxy at home though it looked likely for a time last year. Maybe there is no straighr answer. Like COPD itself there are so many variations. Keep well, Sheila x

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You've got me foxed this time ! I really don't know much about pulsed oxygen and even my friend Google isn't much help ! :)

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Thanks for giving it some thought anyway - and for asking Google. I`ll definitely ask the oxygen nurse next time I go and I`ll let you know. Cheers, Sheila x

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Hello Graham

Do you think the A and D

vitamin cure is good for

chronic bronchitis aspect

of copd ?I wondered as

you often say emphazema.

And what about pulmonary

Fibrosis ?As the new fellow Alan has ?

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Thankyou Graham.

I certainly am doing it shall continue. It is very often the case that people have both the bronchitis and emphysema. I do. Although as its early stage it gives me no real trouble yet except with going

up stairs .

Anyway thankyou for your reply . Keep up the good work you re doing a fine job.

Hopeup.

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Hi Nottingham, is Pat, taking, vit-A, Vit-E. I read that on a post when I joined about 6 weeks ago but forgot who posted it.

Would appreciate if u can email what she is taking & doing. rrlg101@aol.com.

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Thank you so much, where do u find the extra large UT, what is Vit A made from, fish oil or something else

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Hi Lyn1951, I too have COPD. Please Please Please Google 35% Food Grade Hydrogen Peroxide. Also click on foodgrade-hydrogenperoxiode... Also purchase the following books; Hydrogen Peroxide Medical Miracle by William Campbell Douglass II, MD, Flood Your Body with Oxygen by Ed McCabe, and True Power of Hydrogen Peroxide Miracle Path to Wellness by Mary Wright. I promise you won't regret getting the information provided. God bless you is my prayer. CIAO.

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Thank you for your help, will google it now xx

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