Just been to see consultant for the second time (diagnosed 3 months ago with possible COPD). 60% FEV1/FVC but really struggling, particularly with chest discomfort and mild breathlessness - nothing seems to help - put on Spiriva, Fostair and Seretide 125 and Salbutamol. Now told to come off all of these because investigations need to take place re: possible ankylosing spondylitis (that I was diagnosed with over 20 years ago) and the consequential effects on lung function (fibrosis), or indeed a possible diagnosis of something like Wegener's. He didn't seem very positive - any suggestions anyone?
Have also just received a letter regarding possible referral to ENT surgeon and Rheumatology consultant, to assess whether or not the symptoms I am exhibiting are suggesting that maybe I need some form of treatment such as monoclonal antibody therapy.
Does anyone know about this therapy?
What do I do next? Very croaky voice - unlikely to have been caused by use of steroids as the voice had been deteriorating for some time prior to commencement of inhaler therapy. I'm only 48 and may well have to RETIRE from teaching! Smoked 5-10 cigs a day for 10 years. Stopped 7 years ago after 20 years, then had occasional cigars (no more though!!). Also have very dark urine (can't even see the bottom of the pan!!),