Hi all, my mum has end stage emphysema. she went into a hospice for respite today, they said between 1-2 weeks to regulate her breathing. her breathing is so bad but oxygen levels normally 92-94 so no oxygen needed. she is intolerant to most meds including nebs, she throws up. she takes 7.5mg prednisolone daily for life but they are always upping them when breathings bad. she has had small doses of morphine at home, but didnt help. she was so scrared and upset before going into hospice, it is a terrible daunting feeling she must have. when i left today, i phoned her and she said doc said if you were near death would you want to know and she said yes. the thing is no one actually talks to you about why her breathing so bad etc, i know they cant tell exactly, but theres me saying they will sort your breathing out and you can come home feeling better. i know she will die from this but am i kidding myself that they can do anything to sort out her breathing. im so upset at the thought of her in there.
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