Anyone know, and used, Prof J. Malone-Le... - Bladder Health UK

Bladder Health UK

1,157 members389 posts

Anyone know, and used, Prof J. Malone-Lee's treatments on NHS?

Chancery profile image
2 Replies

Hi, I've just discovered this book by Prof James Malone-Lee and wondered if anyone has had any luck in getting this type of treatment from the NHS?

amazon.co.uk/Cystitis-Unmas...

I've currently got a recurrent UTI which antibiotics are only handling while I'm taking them. As soon as they finish it just comes back. I'm treating it myself at the moment with two courses of Amoxicillin I had in the house from previous infections (I've been having this problem, getting progressively worse, since at least 2015). I intend to take one after the other in an attempt to really KILL it, but if it doesn't work I'll need to go back to my doc's and try and convince them to treat it as a chronic UTI and I'd like to use his approach. However, as is normal, my last (and only) urinary test came back negative, which is hardly surprising given how many antibiotics I've had and how much water I drink!

Anyone familiar with his work and been able to use it to get similar help from an NHS GP?

P.S. I've had longstanding bladder sensitivity, urge incontinence, painful urethra etc for years now. I've never bothered trying to get it treated because I'm 64 and have no expectations of ANY doctor, male or female, taking any of it seriously, but I feel it is EXCATLY what he claims, an infection which is well-embedded in my bladder, that is causing all these problems and is now causing more and more UTI infections. Any help appreciated thanks!

Written by
Chancery profile image
Chancery
To view profiles and participate in discussions please or .
Read more about...
2 Replies
LesE62 profile image
LesE62

Hi Chancery and thanks for your post which I read with interest.

I am afraid I can't answer your question about treatment on NHS but I am going to order this book tonight.

Like you, I have suffered from longstanding bladder problems and have been performing intermittent self catheterisation for a long time now. However since August I have had continual UTIs and genuinely have lost count of the number of courses of numerous antibiotics I have had. Also have spoken to I think all the GPs in my health centre and some of them umpteen times about my symptoms.

It seems that you're "at increased risk" of UTIs if you don't catheterise (I suffer from urinary retention among other things) due to retained urine and you're also "at increased risk" of UTIs because you are introducing a catheter!! You really can't win. The strange thing is that until August last year I had only ever had 1 or 2 infections in many years so I don't really know why this has started. The GPs just say that I need another course of antibiotics to clear things up but how long to take them? I have had a few back to back courses and sometimes I only get a few days respite and the longest has been I think 3-4 weeks.

My concern is that the day might come that I really need antibs and they have stopped working.

I am sorry for the longer than intended post here but I understand how you feel. In fact I have one more pill to take tomorrow morning and I have a feeling I will be contacting the health centre again soon but I think I will push for someone to talk more about it. Covid of course has made things more difficult as most of the time it's just a phone call from them and they only want to deal with the pressing issue but I feel this has gone on too long.

Thanks again for your post and I look forward to doing a little research.

I hope you can move things on for yourself and that you get some helpful info from someone.

Take care

Chancery profile image
Chancery in reply to LesE62

Hi Les, that's sounds absolutely awful. I haven't been suffering that long, only a few months and that's bad enough. I have however had bladder sensitivity and a painful urethra for far longer. It sounds as if you could do with seeing a specialist urologist. Hope you get some help soon.

You may also like...

Strange Bladder Problems

are well. Over the last 2 weeks, i have started getting bad urges to use the toilet to urinate...

They lied! Did YOUR cystoscopy hurt?

was but it felt as if I had been punched in the urethra. This was before numbing gel had even gone...