Icd with brugada syndrome : My husband... - British Heart Fou...

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Icd with brugada syndrome

Banu047 profile image
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My husband is a brugada syndrome patient. He had his icd last year. We married seven months ago. Doctor told us we have 50% chance to inherited this disease to our children. How can we prevent from this issue.

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Banu047 profile image
Banu047
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Happyrosie profile image
Happyrosie

I assume you would need genetic testing.

Goonerboy6661 profile image
Goonerboy6661

Hi there,

That’s such a deeply personal situation — I really feel for you. It’s completely natural to be worried about the risk of passing on Brugada syndrome, especially when you’re newly married and thinking about having children.

In terms of prevention:

Right now, there’s no way to change the genetics, but what you can do is:

Speak with a genetic counsellor — they can guide you through options like genetic testing, risk to children, and reproductive choices (including IVF with screening, if that’s something you want to explore).

If you decide to have children naturally, testing is often available later in life, and knowing early means they can be monitored safely over time.

It’s also worth remembering that having a partner with an ICD is already a huge safety net. It means your husband has been protected, and any future child — if ever diagnosed — would benefit from all the advances we now have in screening and prevention.

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