Story

[Prawncrackers58]

was diagnosed with chronic heart disease it all started when we lost our son he had down syndrome and was only 29 we where davastated. Then at work l started to loose my balance l would be putting items in the shop and just fall back. I had to finish work then my stomach started to swell in the January l went into hospital which then took 4 and a half months for them to find out what they was the matter with me but also while l was in hospital l had a nervous break down so all in all it was lots of fun Not.

[Cee-Cee1]

Good Morning, Prawncrackers - I just wanted to welcome you to the forum. You'll find lots of kind, helpful and knowledgeable people here to help with queries and share their own stories and experiences.

I'm so sorry to read that you lost your darling son and would like to extend my deepest sympathies.

Please keep in touch, the forum members are all very supportive and even if you just want to have a rant at the unfairness that life can bring us sometimes, then this is the place to do it. Sending every best wish. Carol

[Prawncrackers58 in reply to Cee-Cee1]

Ahhh thankyou so much big hug back and it's nice to know that there are lovely people out there with such kindness and understanding xxxxxxx

[BobbyCollins]

Hi there I am so sorry to hear of the loss of your son. I too lost my son and you cannot underestimate the enormity of such a devastating loss. They are everything in the world to you so the effect on your health is almost inevitable. I wish I had looked after myself better instead of trying to get on as everyone says. Please do what you want and don't do things for other people's sake. It is too much added pressure. Welcome to the forum hope you will find some comfort people really do try to help. Sending you lots of love take care x

[Prawncrackers58 in reply to BobbyCollins]

Ahh thankyou big hug back it is so hard and how can it get better when your son leaves your side xxxxx

[BobbyCollins in reply to Prawncrackers58]

Well really you can't sorry to say. But in time (a long time) you somehow learn to cope. Take care ❣️ xxx

[Thanksnhs]

Hi and welcome to the forum, I am so sorry to hear that you lost your beloved son and were also very unwell, everyone is here to listen and help in any way they can , I have had some wonderful advice from some lovely people over the years.Take care Char xx

[Haggishead]

i know exactly how you feel,y dear friend. I had my beloved DS son for 57 years and when he passed away i was completely lost. 3 months later i was so breathless I couldn’t get up the stairs. After many tests inwas diagnosed with heart faiure. I thought I was very fit as had walked miles pushing my sons wheelchair with no problems, lifted him up and down as usual and he was a big lad. Heart blood test said anything under 300 no heart failure, mine was 2,000 Dr said grief like mine was the cause and there was a name for it which meant broken heart syndrome. 7 years on, I am 88 years old ,still grieving but on a lot of medication. I wouldnt change one minute of my life and still think I was blessed to have had my beautiful son, DS, non verbal , incontinent and in a wheelchair, we had a good and happy life. So, you are not alone. Sending you the very best wishes.

[Prawncrackers58 in reply to Haggishead]

Thankyou for your support and understanding it is very hard we as a family miss Dean so much it hurts so much as you know your life has died as well because you just don't know what to do but Lovely to chat to you and l hope you keep in touch xx big hug

[Haggishead in reply to Prawncrackers58]

yes, I would like to keep in touch, someone who really knows what a broken heart feels like. Big hug to you too xx

[PinkKizzie]

Hi Prawncrackers58, I'd like to echo everything Cee-Cee1 said in her reply to you. You never feel alone when you are a member of this forum. Wishing you well. 🫂

[Prawncrackers58 in reply to PinkKizzie]

Ahhhhhhhhhhh thankyou xx